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Meniere's Muse
Heather Davies
56 episodes
5 days ago
I’ve spent the last several years trying to figure out how to live my best life with Meniere’s disease and vestibular migraine. I have learned just how important connection is with other vestibular warriors. Through support, stories, conversation and tears, we have shared through social media, we’ve found a community of amazing people that lean on and support each other. I want this podcast to reach other vestibular warriors regardless of their diagnosis or where they are on their journey, to let them know they aren’t alone and living a beautiful life, despite these symptoms, is possible.
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I’ve spent the last several years trying to figure out how to live my best life with Meniere’s disease and vestibular migraine. I have learned just how important connection is with other vestibular warriors. Through support, stories, conversation and tears, we have shared through social media, we’ve found a community of amazing people that lean on and support each other. I want this podcast to reach other vestibular warriors regardless of their diagnosis or where they are on their journey, to let them know they aren’t alone and living a beautiful life, despite these symptoms, is possible.
Show more...
Relationships
Society & Culture
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"Dear Meniere's", Excerpts from this Global Meniere's Project by people living with Meniere's Disease. E38
Meniere's Muse
16 minutes 55 seconds
2 years ago
"Dear Meniere's", Excerpts from this Global Meniere's Project by people living with Meniere's Disease. E38

When approached by Julieann Wallace with this crazy idea that came to her in the wee hours of the morning, I could never have imagined the magnitude of the emotional journey we were about to partake in. Letters, poems, and artwork flooded in. People diagnosed with Meniere’s gave us glimpses into the darkest part of their lives exposing delicate parts of their souls.  Today, instead of a podcast guest interview, I wanted to share a few letters that are included in this gorgeous book. 

All proceeds will be donated to Meniere's Disease research.

Hardback and paperback link

Ebook


To reach out to Sarah:

Instagram

Facebook

Sober Gratitudes Podcast


To read or listen to the book, "The Color of Broken" by Amelia Grace, all proceeds are donated to Meniere's Research


To reach out to Patrick, please email him at: patvestibjourney@gmail.com


To read Steve's book "On the Vertigo", One Sick Mans Journey To Make A Difference find it here, when you read his book, be certain to follow his journey on Instagram as you read through the book, you will be right there with him on the journey

Instagram


I WOULD LOVE TO HEAR WHAT YOU THOUGHT OF THE LETTERS TO MENIERE'S - LEAVE A VOICE MESSAGE HERE: Your message may be used on a future episode of the Meniere's Muse Podcast.


If you would like to reach out to me, Heather Davies:

Email me at menieresmuse@gmail.com ⁠⁠⁠⁠Instagram⁠⁠⁠⁠

⁠⁠⁠⁠Private Facebook Group⁠⁠⁠⁠

⁠⁠⁠⁠Leave a voice message⁠⁠⁠⁠


Would you like to JOIN THE MOVEMENT and make a donation in honor of my pledge for ⁠⁠Steps 2 Balance ⁠⁠week, May 21, 2023 through 27th, where we will be walking "together" to raise awareness, your support will also help make sure that when a person gets dizzy, they will get the help they need.  Please make your pledge ⁠⁠here⁠⁠

For more information on vestibular disorders please visit ⁠⁠⁠⁠VeDA website⁠⁠⁠⁠


⁠⁠⁠Online Support Groups⁠⁠⁠: Facilitated by Angela S., Lakin, Racheal, Dave, Joy and Marissa

The meeting ID and Pass Code are the same for all meetings. 

Meeting Id: 841 905 3323

Pass Code: dizzy


Meniere's Support Group times:

Wednesday 10am CT / 9am ET

Wednesday 2pm CT / 1pm ET

Wednesday 5pm CT / 4pm ET

Wednesday 8:30pm CT / 7:30pm ET


Vestibular Zoom Support Group Meetings (for all vestibular disorders):

Thursdays at 8pm CT / 7pm ET Thank you for listening!


Remember to love yourself, be open to the work, lean on this beautiful community, and lastly believe healing is possible. 




Meniere's Muse
I’ve spent the last several years trying to figure out how to live my best life with Meniere’s disease and vestibular migraine. I have learned just how important connection is with other vestibular warriors. Through support, stories, conversation and tears, we have shared through social media, we’ve found a community of amazing people that lean on and support each other. I want this podcast to reach other vestibular warriors regardless of their diagnosis or where they are on their journey, to let them know they aren’t alone and living a beautiful life, despite these symptoms, is possible.