I’ve spent the last several years trying to figure out how to live my best life with Meniere’s disease and vestibular migraine. I have learned just how important connection is with other vestibular warriors. Through support, stories, conversation and tears, we have shared through social media, we’ve found a community of amazing people that lean on and support each other. I want this podcast to reach other vestibular warriors regardless of their diagnosis or where they are on their journey, to let them know they aren’t alone and living a beautiful life, despite these symptoms, is possible.
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I’ve spent the last several years trying to figure out how to live my best life with Meniere’s disease and vestibular migraine. I have learned just how important connection is with other vestibular warriors. Through support, stories, conversation and tears, we have shared through social media, we’ve found a community of amazing people that lean on and support each other. I want this podcast to reach other vestibular warriors regardless of their diagnosis or where they are on their journey, to let them know they aren’t alone and living a beautiful life, despite these symptoms, is possible.
When you think of VeDA (Vestibular Disorders Association) what first comes to mind? Practitioners, support groups, pink flamingos what comes to mind for you? Well, after this conversation, VeDA, Vestibular Disorders Association will mean so much more. The magnitude of things this organization has to offer is enormous and ever-changing due to its volunteers and all the people behind the scenes, like today's guest, Cynthia Ryan.
Cynthia has worked in non-profit management for over 18 years, prior to her dedication to nonprofit work she honed her leadership skills by managing a financial research firm for 12 years. Interestingly, Cynthia’s mother, Eileen, suffers from Meniere’s disease, vestibular migraine, and BPPV. Stepping into her role as VeDAs Executive Director and hearing stories from vestibular warriors all over the world, Cynthia has begun to understand a little more intimately what her mother has and continues to live through.
In this episode, we touch on these and many other topics:
~ her mother’s Meniere’s journey, the impact of vestibular warriors stories, importance of sharing diagnosis and symptoms with family/friends, having a medical “team” is so important.
~ the many things VeDA has to offer the community, ICU Podcast, VeDAs Board of Directors, Life Rebalanced Chronicles Docuseries -
Season 2
~ Upcoming Balance Awareness Week, Fiona Flamingo Contest,
VeDA Support Network
~ How you can help!! Write your congressman, find the "Legislative Advocacy Toolkit" link below, and complete the "New Patient Registry"
New Patient ToolKit
New patient Registry
Want to get involved? Here is a great start
Want to get more involved reach out to VeDA directly!
Find a support group
VeDA sponsored Podcasts
Vestibular Disorders Association YouTube Channel!
Ways to give! https://vestibular.org/article/get-involved/support-veda/
Find a Clinician
If you would like to reach me, Heather:
Instagram
YouTube Channel
Podcast
Email
Leave me a voice message!
Remember to love yourself, do the work, lean on this
beautiful community, and lastly believe healing is possible. See you next week warriors!
Meniere's Muse
I’ve spent the last several years trying to figure out how to live my best life with Meniere’s disease and vestibular migraine. I have learned just how important connection is with other vestibular warriors. Through support, stories, conversation and tears, we have shared through social media, we’ve found a community of amazing people that lean on and support each other. I want this podcast to reach other vestibular warriors regardless of their diagnosis or where they are on their journey, to let them know they aren’t alone and living a beautiful life, despite these symptoms, is possible.
