Episode 16: Therapy, Advocacy, and Family with Camila and Jedidiah

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MEF2Cast

30 episodes

5 days ago

Haley and Eli, parents of a child with MEF2C Haploinsufficiency Syndrome (MCHS), speak to both other parents and scientific experts to educate, support, and build community around MCHS

Science

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Haley and Eli, parents of a child with MEF2C Haploinsufficiency Syndrome (MCHS), speak to both other parents and scientific experts to educate, support, and build community around MCHS

Science

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Episode 16: Therapy, Advocacy, and Family with Camila and Jedidiah

MEF2Cast

1 hour 31 minutes 34 seconds

3 months ago

Episode 16: Therapy, Advocacy, and Family with Camila and Jedidiah

In today’s episode, we are joined by Camila and Jedidiah Seaman, parents to Margo. Camila and Jedidiah join us to discuss Margo’s story, the lessons learned along the way, and their hopes for the future. Subjects discussed include:

Margo’s journey to diagnosis
How Jedidiah and Camila are processing the diagnosis
Therapeutic techniques that have been useful for Margo
The importance of having a good care team
The support therapists provide to both the patient and their families

And so much more!

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