In this episode of the Medical Trauma Support Podcast, Sarah speaks with Lauren Isbell and Whitney Casal from Nevis Outreach, a patient advocacy organization focused on Congenital Melanocytic Nevi (CMN). They discuss their personal connections to CMN, the challenges families face when navigating medical decisions, and the importance of community support. The conversation highlights the medical risks associated with CMN, the need for shared decision-making in healthcare, and the emotional weight of making treatment choices for children. The episode emphasizes the value of connection and understanding among families dealing with rare diseases, and encourages listeners to seek out supportive communities.

Nevus Outreach - https://www.nevus.org/

Shared Decision Making - https://collaborativecare.wustl.edu/items/shared-decision-making-about-congenital-nevi/

Medical Trauma Support - https://www.medicaltraumasupport.com

Befriend Your Body Community - https://www.medicaltraumasupport.org/befriend-your-body-community