Welcome to the (post-)apocalypse, where long COVID has disabled the masses. Follow disabled philosopher of disability Élaina Gauthier-Mamaril as she explores the landscape of chronic care past and present to better imagine disabled futures. Disability communities are warning us that an age of enhanced eugenics is nigh; people are being told their symptoms are not real; official public health messaging is that the pandemic is over; treating people living with long COVID is far from straightforward. Let a philosopher lead the investigation, if you dare.
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Welcome to the (post-)apocalypse, where long COVID has disabled the masses. Follow disabled philosopher of disability Élaina Gauthier-Mamaril as she explores the landscape of chronic care past and present to better imagine disabled futures. Disability communities are warning us that an age of enhanced eugenics is nigh; people are being told their symptoms are not real; official public health messaging is that the pandemic is over; treating people living with long COVID is far from straightforward. Let a philosopher lead the investigation, if you dare.
This one is for the kids. Long COVID can affect anyone at any age, but growing up with a chronic illness means you are learning who you are while realising who you will never be. This one is for the epidemic survivors who are still here, still around, even though the disease that changed your life is no longer the hot topic. This one is for the people living with post-polio who were told it was all in their heads. If that sounds familiar, this one is for you too. It’s for all of us. We need to talk to each other.
CN: This episode contains discussions of medical disbelief and trauma.
Texts mentioned in this episode:
(Referenced by Katie Bourdeau): COVID Long-Haulers Canada, Statement from the Chief Public Health Officer of Canada on July 7, 2021, Prevalence of long-term effects in individuals diagnosed with COVID-19: a living systematic review
Van Lier et al: Disease Burden of 32 Infectious Diseases in the Netherlands, 2007-2011
Ruth Bridgen’s thesis: Postpolio syndrome—“We aren't dead yet”
The Office of National Statistics March 2023 report
I would like to thank the British Polio Fellowship for connecting me with Frances and Ruth.
Full transcripts and references are available at www.massivelydisabled.com
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Hosting, producing, and editing is done by Élaina Gauthier-Mamaril
Music is by Morgan Kluck-Keil
This podcast is made with the support of the Centre for Biomedicine, Self and Society, Usher Institute, at the University of Edinburgh.
Massively Disabled: A Long COVID Research Podcast
Welcome to the (post-)apocalypse, where long COVID has disabled the masses. Follow disabled philosopher of disability Élaina Gauthier-Mamaril as she explores the landscape of chronic care past and present to better imagine disabled futures. Disability communities are warning us that an age of enhanced eugenics is nigh; people are being told their symptoms are not real; official public health messaging is that the pandemic is over; treating people living with long COVID is far from straightforward. Let a philosopher lead the investigation, if you dare.
