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Make Visible: Complex Chronic Illness Explored
Visible with Emily Kate Stephens
25 episodes
4 days ago
Shining a light on complex chronic illness. Journalist Emily Kate Stephens discusses the latest research and insights with the world’s leading experts, scientists and healthcare professionals.  Including ME/CFS, Long Covid, EDS, Fibromyalgia, POTS, and more, we delve into the science of energy-limiting, invisible illness.
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Medicine
Health & Fitness
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Shining a light on complex chronic illness. Journalist Emily Kate Stephens discusses the latest research and insights with the world’s leading experts, scientists and healthcare professionals.  Including ME/CFS, Long Covid, EDS, Fibromyalgia, POTS, and more, we delve into the science of energy-limiting, invisible illness.
Show more...
Medicine
Health & Fitness
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#18 Leading research, delivering hope: The Open Medicine Foundation’s mission with Linda Tannenbaum
Make Visible: Complex Chronic Illness Explored
1 hour 5 minutes 36 seconds
3 months ago
#18 Leading research, delivering hope: The Open Medicine Foundation’s mission with Linda Tannenbaum
The Open Medicine Foundation is the world’s largest non-profit aimed at diagnosing, treating and preventing complex chronic disease. This week, founder and CEO Linda Tannenbaum joins Emily Kate Stephens to discuss the OMF’s work, delivering collaborative research from some of the world’s leading scientists, and offering hope to millions. Now with six specialised centers operating out of leading institutions, from the ME/CFS Collaborative Research Center at Stanford to Harvard, to the University of Melbourne, Tannenbaum has overseen more than 68 projects to try and understand these life-changing conditions.  In today’s episode she explains the way in which the OMF was launched, in collaboration with the formidable Dr. Ron Davis, bringing together hundreds of scientists, across a huge range of specialities to try to create a multi-system framework to look at these multi-system diseases. And Tannenbaum discusses the details of the most recent studies and trials, including TREAT ME (patient-reported outcomes from 4,000+ participants), Bio Quest (AI-powered biomarker discovery), and the first OMF double blind placebo controlled trial LIFT – a groundbreaking study looking at the efficacy of LDN and Mestinon. From leveraging AI to hosting global research summits, the OMF is committed to bringing awareness, research and treatments to those suffering from chronic complex diseases, and whilst the ultimate goal is to find a cure for ME/CFS, in the interim they are working to improve the lives of patients through better understanding and management of the condition.   Make Visible @visible_health @visible.health
Make Visible: Complex Chronic Illness Explored
Shining a light on complex chronic illness. Journalist Emily Kate Stephens discusses the latest research and insights with the world’s leading experts, scientists and healthcare professionals.  Including ME/CFS, Long Covid, EDS, Fibromyalgia, POTS, and more, we delve into the science of energy-limiting, invisible illness.