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Living While Dying: An ALS Story
Minnesota Public Radio
29 episodes
8 months ago
Bruce Kramer lived a remarkably rich life because of – not despite – an incurable, always fatal disease: Amyotrophic Lateral Sclerosis, or Lou Gehrig’s Disease. He was diagnosed with ALS December 6, 2010. While the disease diminished his body, it expanded his life and spirit. He shared that experience with Minnesota Public Radio News host Cathy Wurzer over nearly five year of conversations.
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All content for Living While Dying: An ALS Story is the property of Minnesota Public Radio and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Bruce Kramer lived a remarkably rich life because of – not despite – an incurable, always fatal disease: Amyotrophic Lateral Sclerosis, or Lou Gehrig’s Disease. He was diagnosed with ALS December 6, 2010. While the disease diminished his body, it expanded his life and spirit. He shared that experience with Minnesota Public Radio News host Cathy Wurzer over nearly five year of conversations.
Show more...
Science
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14. drug trial ethics
Living While Dying: An ALS Story
15 minutes 28 seconds
10 years ago
14. drug trial ethics
Bruce Kramer believed that researchers need to rethink the way they test new drugs on ALS patients like him. He argued that the double-blind testing model doesn't work for a devastating fatal illness like ALS. In this episode of Living While Dying, we also hear from a bio-ethicist about the decision to deny some patients access to an experimental drug.
Living While Dying: An ALS Story
Bruce Kramer lived a remarkably rich life because of – not despite – an incurable, always fatal disease: Amyotrophic Lateral Sclerosis, or Lou Gehrig’s Disease. He was diagnosed with ALS December 6, 2010. While the disease diminished his body, it expanded his life and spirit. He shared that experience with Minnesota Public Radio News host Cathy Wurzer over nearly five year of conversations.