Episode 4: ECFS '25 special

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Living and Breathing It

Dan Beever

6 episodes

3 days ago

Join Dan Beever, Research Fellow at the University of Nottingham, as he navigates the way through his PhD exploring MRI scanning of the lungs in cystic fibrosis, as someone living with the condition. Along the way, Dan will be speaking to others with their own lived experience stories and together, they will explore what it’s like to work on something that you have such a close personal connection with. Do you have a lived experience journey to share? Get in touch at danbeever.co.uk.

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Social Sciences

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Episode 4: ECFS '25 special

Living and Breathing It

27 minutes 13 seconds

4 months ago

Episode 4: ECFS '25 special

In this special episode, Dan reflects on the recent European Cystic Fibrosis Society conference (ECFS) with Bethinn Evans, PhD student at Queen’s University Belfast, who also has cystic fibrosis and is doing research in cystic fibrosis.

You can find out more about Bethinn’s research here & follow the study on Instagram.

For reference, the study reporting on behavioural issues in children on modulator therapy that Bethinn refers to is available here.

You can join the Cystic Fibrosis Qualitative Research Network here.

Do you have a lived experience journey to share?

Get in touch at danbeever.co.uk

Music by Ivan Luzan, www.ivanluzan.com