Rescue7.org From the Abilities Expo in Chicago we're with Frank, a dad navigating a nanorare KIF1A diagnosis and a journey that rewrote his family’s map. What began with early toe-walking and questions about spasticity became a lesson in timing, persistence, and the power of genetic testing. A newly opened panel in Milwaukee delivered the clarity they needed, shifting the focus from guesswork to action. Frank walks us through the care plan that followed: The goal isn’t perfection—it’s ...
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Rescue7.org From the Abilities Expo in Chicago we're with Frank, a dad navigating a nanorare KIF1A diagnosis and a journey that rewrote his family’s map. What began with early toe-walking and questions about spasticity became a lesson in timing, persistence, and the power of genetic testing. A newly opened panel in Milwaukee delivered the clarity they needed, shifting the focus from guesswork to action. Frank walks us through the care plan that followed: The goal isn’t perfection—it’s ...
Living With Dwarfism, And Defining Purpose, Dream In Sports Management
Life to the Max Podcast
4 minutes
1 week ago
Living With Dwarfism, And Defining Purpose, Dream In Sports Management
Grabbed a quick seat at the Abilities Expo in Chicago to talk with Maleena, a high schooler who lives with dwarfism and aims to break into sports management. What follows is a brisk, open conversation about scouting, communication, and the small, intentional choices that make teams work better—on the field and behind the scenes. Maleena lights up when she talks football and basketball, but she’s not chasing highlight reels. She’s studying patterns, learning to read tempo, and thinking about ...
Life to the Max Podcast
Rescue7.org From the Abilities Expo in Chicago we're with Frank, a dad navigating a nanorare KIF1A diagnosis and a journey that rewrote his family’s map. What began with early toe-walking and questions about spasticity became a lesson in timing, persistence, and the power of genetic testing. A newly opened panel in Milwaukee delivered the clarity they needed, shifting the focus from guesswork to action. Frank walks us through the care plan that followed: The goal isn’t perfection—it’s ...
