Rescue7.org From the Abilities Expo in Chicago we're with Frank, a dad navigating a nanorare KIF1A diagnosis and a journey that rewrote his family’s map. What began with early toe-walking and questions about spasticity became a lesson in timing, persistence, and the power of genetic testing. A newly opened panel in Milwaukee delivered the clarity they needed, shifting the focus from guesswork to action. Frank walks us through the care plan that followed: The goal isn’t perfection—it’s ...
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Rescue7.org From the Abilities Expo in Chicago we're with Frank, a dad navigating a nanorare KIF1A diagnosis and a journey that rewrote his family’s map. What began with early toe-walking and questions about spasticity became a lesson in timing, persistence, and the power of genetic testing. A newly opened panel in Milwaukee delivered the clarity they needed, shifting the focus from guesswork to action. Frank walks us through the care plan that followed: The goal isn’t perfection—it’s ...
From Diagnosis To Design: A Maker’s Journey With MS
Life to the Max Podcast
5 minutes
1 week ago
From Diagnosis To Design: A Maker’s Journey With MS
@3dlabsjR Kathleen Thomas brings a story that’s equal parts grit and ingenuity. From growing up in Indianapolis to navigating life with MS, Kathleen channeled daily challenges into a small, delightful solution: a palm-sized 3D-printed turtle with a clickable shell that helps calm the mind. We dig into how a simple fidget can lower stress in loud spaces, soothe anxiety in quiet moments, and give users a sense of control when they need it most. We pull back the curtain on her brand, 3D Labs Jr...
Life to the Max Podcast
Rescue7.org From the Abilities Expo in Chicago we're with Frank, a dad navigating a nanorare KIF1A diagnosis and a journey that rewrote his family’s map. What began with early toe-walking and questions about spasticity became a lesson in timing, persistence, and the power of genetic testing. A newly opened panel in Milwaukee delivered the clarity they needed, shifting the focus from guesswork to action. Frank walks us through the care plan that followed: The goal isn’t perfection—it’s ...
