Rescue7.org From the Abilities Expo in Chicago we're with Frank, a dad navigating a nanorare KIF1A diagnosis and a journey that rewrote his family’s map. What began with early toe-walking and questions about spasticity became a lesson in timing, persistence, and the power of genetic testing. A newly opened panel in Milwaukee delivered the clarity they needed, shifting the focus from guesswork to action. Frank walks us through the care plan that followed: The goal isn’t perfection—it’s ...
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Rescue7.org From the Abilities Expo in Chicago we're with Frank, a dad navigating a nanorare KIF1A diagnosis and a journey that rewrote his family’s map. What began with early toe-walking and questions about spasticity became a lesson in timing, persistence, and the power of genetic testing. A newly opened panel in Milwaukee delivered the clarity they needed, shifting the focus from guesswork to action. Frank walks us through the care plan that followed: The goal isn’t perfection—it’s ...
Acceptance without Surrender: Taking Life's Trials as They Come
Life to the Max Podcast
8 minutes
2 weeks ago
Acceptance without Surrender: Taking Life's Trials as They Come
Instagram @quadlifewithryan We sat down with Ryan Herrick from Fort Wayne and unpacked what it means to live independently with a C7 spinal cord injury, from driving solo and hotel check-ins to planning trips just because the city looks beautiful from a new angle. The talk is lean, real, and candid: no studio gloss, just two people trading tools for resilience in the middle of a busy Abilities Expo. Ryan shares how one broken vertebra redrew his map—and how community filled it back in....
Life to the Max Podcast
Rescue7.org From the Abilities Expo in Chicago we're with Frank, a dad navigating a nanorare KIF1A diagnosis and a journey that rewrote his family’s map. What began with early toe-walking and questions about spasticity became a lesson in timing, persistence, and the power of genetic testing. A newly opened panel in Milwaukee delivered the clarity they needed, shifting the focus from guesswork to action. Frank walks us through the care plan that followed: The goal isn’t perfection—it’s ...
