This podcast series focuses on the experience of parents of children who have died or are likely to have a short life. Despite advances in health care, children and young people still sadly die from a range of life limiting conditions. The parents in this series have been supported by palliative care teams to face multiple challenges in caring for their children. These parents bravely share the love and beauty of their children and the joy and sadness of their individual experiences. They hope their voices can support, inform, and better prepare other families who may need to face similar challenges. Season One is a collaborative project funded by the Quality of Care Collaborative Australia (QuoCCA) in partnership with The Royal Children's Hospital, Melbourne and the Victorian Paediatric Palliative Care Program. Season Two is a collaboration between The Royal Children's Hospital, Victorian Paediatric Palliative Care Program and Palliative Care Australia, funded as part of the Paediatric Palliative Care National Action Plan Project. This project received grant funding from the Australian Government. We warmly thank the parents who have generously taken part in this series.
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This podcast series focuses on the experience of parents of children who have died or are likely to have a short life. Despite advances in health care, children and young people still sadly die from a range of life limiting conditions. The parents in this series have been supported by palliative care teams to face multiple challenges in caring for their children. These parents bravely share the love and beauty of their children and the joy and sadness of their individual experiences. They hope their voices can support, inform, and better prepare other families who may need to face similar challenges. Season One is a collaborative project funded by the Quality of Care Collaborative Australia (QuoCCA) in partnership with The Royal Children's Hospital, Melbourne and the Victorian Paediatric Palliative Care Program. Season Two is a collaboration between The Royal Children's Hospital, Victorian Paediatric Palliative Care Program and Palliative Care Australia, funded as part of the Paediatric Palliative Care National Action Plan Project. This project received grant funding from the Australian Government. We warmly thank the parents who have generously taken part in this series.
Aspects of hope and spirituality in paediatric palliative care (PPC) are unique to every child and family, and closely attuned to a family’s beliefs, attitudes, values, and culture. Caring for a child and family’s spirit should be seen as a vital component of holistic PPC, along with the physical, psychological and social components of care. The role of spiritual care takes on greater importance as a child approaches the end of their life. While some children and families feel conflicted about hope and spirituality, many seek opportunities to find meaning, purpose, and fulfilment in their lives. In recalling their experiences of caring for their children, two families consider what hope and spirituality mean to them, and how their views may change over time.
Life, Love and Loss
This podcast series focuses on the experience of parents of children who have died or are likely to have a short life. Despite advances in health care, children and young people still sadly die from a range of life limiting conditions. The parents in this series have been supported by palliative care teams to face multiple challenges in caring for their children. These parents bravely share the love and beauty of their children and the joy and sadness of their individual experiences. They hope their voices can support, inform, and better prepare other families who may need to face similar challenges. Season One is a collaborative project funded by the Quality of Care Collaborative Australia (QuoCCA) in partnership with The Royal Children's Hospital, Melbourne and the Victorian Paediatric Palliative Care Program. Season Two is a collaboration between The Royal Children's Hospital, Victorian Paediatric Palliative Care Program and Palliative Care Australia, funded as part of the Paediatric Palliative Care National Action Plan Project. This project received grant funding from the Australian Government. We warmly thank the parents who have generously taken part in this series.
