This podcast series focuses on the experience of parents of children who have died or are likely to have a short life. Despite advances in health care, children and young people still sadly die from a range of life limiting conditions. The parents in this series have been supported by palliative care teams to face multiple challenges in caring for their children. These parents bravely share the love and beauty of their children and the joy and sadness of their individual experiences. They hope their voices can support, inform, and better prepare other families who may need to face similar challenges. Season One is a collaborative project funded by the Quality of Care Collaborative Australia (QuoCCA) in partnership with The Royal Children's Hospital, Melbourne and the Victorian Paediatric Palliative Care Program. Season Two is a collaboration between The Royal Children's Hospital, Victorian Paediatric Palliative Care Program and Palliative Care Australia, funded as part of the Paediatric Palliative Care National Action Plan Project. This project received grant funding from the Australian Government. We warmly thank the parents who have generously taken part in this series.
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This podcast series focuses on the experience of parents of children who have died or are likely to have a short life. Despite advances in health care, children and young people still sadly die from a range of life limiting conditions. The parents in this series have been supported by palliative care teams to face multiple challenges in caring for their children. These parents bravely share the love and beauty of their children and the joy and sadness of their individual experiences. They hope their voices can support, inform, and better prepare other families who may need to face similar challenges. Season One is a collaborative project funded by the Quality of Care Collaborative Australia (QuoCCA) in partnership with The Royal Children's Hospital, Melbourne and the Victorian Paediatric Palliative Care Program. Season Two is a collaboration between The Royal Children's Hospital, Victorian Paediatric Palliative Care Program and Palliative Care Australia, funded as part of the Paediatric Palliative Care National Action Plan Project. This project received grant funding from the Australian Government. We warmly thank the parents who have generously taken part in this series.
An introduction to Palliative Care - “Let's talk about the elephant in the room”
Life, Love and Loss
54 minutes
3 years ago
An introduction to Palliative Care - “Let's talk about the elephant in the room”
The suggestion of a referral to palliative care is often scary and overwhelming. Families approach referrals in individual ways. Some avoid it at all costs, some openly embrace it and there is a vast spectrum of responses in between. Some families feel like a referral to palliative care signifies “giving up” on their child or foregoing further treatment and care. Others find value in hearing how palliative care can make a difference to support their child and family.
In this episode, we hear from three parents who reflect on how their family tackled a referral to palliative care, how they managed their fears and hesitations, and what they would like to share with other families about the experience.
Life, Love and Loss
This podcast series focuses on the experience of parents of children who have died or are likely to have a short life. Despite advances in health care, children and young people still sadly die from a range of life limiting conditions. The parents in this series have been supported by palliative care teams to face multiple challenges in caring for their children. These parents bravely share the love and beauty of their children and the joy and sadness of their individual experiences. They hope their voices can support, inform, and better prepare other families who may need to face similar challenges. Season One is a collaborative project funded by the Quality of Care Collaborative Australia (QuoCCA) in partnership with The Royal Children's Hospital, Melbourne and the Victorian Paediatric Palliative Care Program. Season Two is a collaboration between The Royal Children's Hospital, Victorian Paediatric Palliative Care Program and Palliative Care Australia, funded as part of the Paediatric Palliative Care National Action Plan Project. This project received grant funding from the Australian Government. We warmly thank the parents who have generously taken part in this series.
