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Show Notes
fern (they/them) and Myco (it/its) discuss the impacts of life-long medical neglect and abuse at the hands of health "care" professionals. Myco reads a piece it recently wrote and chats with fern about going through the motions while feeling lost and how to cope in what feels like an impossible situation.
Image Description:
An exhausted, non-descript human with pale skin and neon yellow hair leans against a red wall. Behind it are the words "Thank the wall" which pop forward from the blue and green background.
Transcript:
Transcript doc
Fern (they/them): Hello! Welcome to another episode of Liberatory Naysayers. I’m fern. I use they/them pronouns.
Myco (it/its): I’m Myco, I use it/its pronouns.
F: Myco, what are we talking about today?
M: I wanted to talk about something I wrote over the weekend. Was it over the weekend? I’m losing track of time. Is that correct?
F: Yeah, I think so. Saturday. We didn’t need that much detail. Anyway!
M: Very important!
F: This is how we function actually.
M: It was at 2:05pm on a rainy saturday in June… I mean… wait…
F: Shut up (playfully) That is how we talk a lot though. I’m like no remember it was tuesday because we did the dadada and we saw this thing. Then you’re like ooooooh yeah. Anyway. Something you’ve written recently, but something that we talk about pretty much all the time. Something on our minds all the time. Lots of chronic illness, medical neglect themes today.
What’s your writing titled?
M: I called it Liminal Dreams, but when I was thinking about what to call this episode I came up with Thank the Wall. Which is a reference to a line in the piece too, and I like that!
F: Do you wanna read it?
M: Yeah.
—
I feel liminal
On a razor edge
Hazy
Floating in and out
Of consciousness
Aliveness
Fading
Discussing mcdonalds orders
Body still needs fuel after all
The mundanity of it
Driving to see a possible home
Maybe
Probably not gonna happen if we are honest
Struggling to remain upright
Struggling to remain conscious
My burning spine
Fantasizing about
Tearing it out
Throwing it out the car window
“Do you want a drink?”
Yeah
“I’ll split it with you”
Thank you
It burns, it burns, it burns
My hips twisting
My tailbone aching
The weight of my head immense
My eyes refusing to stay open
Slipping away
Then
Walking around a home
Holding her hand
Trying to listen
To think
To take in information
To look for red flags
To entertain
Black out again and again
Try not to be noticed
“Myco? Myco? Myco?”
Sorry, hold on a second
Heart jumping out of my throat
The effort of staying upright
At the top of a flight of stairs
Overwhelming
Thank the wall for
Holding me
Up
Gods I’m too sick to be looking for housing
I’m too sick to be upright
I’m too sick to be here
But here I am
Holding her hand
As she climbs a tree
As my partner gathers important information
Don’t pass out
Keep her from breaking her neck
Then
Back to the car
Fading
In
Out
In again
“Myco pick a video!”
I can’t remember anything
What video?
“Snake” says my partner
Snake
I echo back
My tongue too big
Too clumsy
My voice tiny and slurred
Far away
I slide in and out of here and now
In agony fever dreams
Defending my affection for Chip the Stoma
“You don’t understand! I love him!”
I say to blank faced strangers at a bar
As if I could ever be found at a bar
Remembering the dad I can’t remember
Who gave me back after a cancer diagnosis
People don’t usually give away their kids
Just because they become sick
In the clear moments
I wonder
Sometimes
If she notices
If she sees past my bullshit pretending to be more than I am
Wonder if she worries
You do for sure
I’m worried if I’m being honest
Scared
Every time my hearing cuts out
Every time my vision goes black
Every time my skin flushes red
Every time I start panting and sweating like I ran miles
Every time my speech slurs
And I lose thoughts
And I can’t remember
Every time my spine burns
Every time my bones refuse to