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Kidney Transplant Conversations ~ Patient, Donor & Caregiver Edition
Project Advocacy
20 episodes
6 months ago
Kidney Transplant Conversations features diverse voices and experiences of donating, receiving, and caring for this gift of life. Over the coming months each new episode will feature interviews with patients, caregivers, advocates, donors, healthcare providers, and community leaders. All views and opinions expressed in the podcast reflect those of the participants and do not necessarily represent the views and opinions of the producers or underwriters. Series 1 of Kidney Transplant Conversations was underwritten by Veloxis Pharmaceuticals, Inc. Series 2 of Kidney Transplant Conversations is underwritten by Project Advocacy, Inc.
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Medicine
Society & Culture,
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All content for Kidney Transplant Conversations ~ Patient, Donor & Caregiver Edition is the property of Project Advocacy and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Kidney Transplant Conversations features diverse voices and experiences of donating, receiving, and caring for this gift of life. Over the coming months each new episode will feature interviews with patients, caregivers, advocates, donors, healthcare providers, and community leaders. All views and opinions expressed in the podcast reflect those of the participants and do not necessarily represent the views and opinions of the producers or underwriters. Series 1 of Kidney Transplant Conversations was underwritten by Veloxis Pharmaceuticals, Inc. Series 2 of Kidney Transplant Conversations is underwritten by Project Advocacy, Inc.
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Medicine
Society & Culture,
Health & Fitness
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S1 E2. José and Xiomara Flores share their living donor transplant journey. UNC Chapel Hill Latino Transplant Clinic, Part 1
Kidney Transplant Conversations ~ Patient, Donor & Caregiver Edition
34 minutes 30 seconds
4 years ago
S1 E2. José and Xiomara Flores share their living donor transplant journey. UNC Chapel Hill Latino Transplant Clinic, Part 1
In this episode we’ll hear from José a patient, and Xiomara, his wife and donor, as they describe the challenges they experienced in their quest for a kidney transplant, and the joy they have felt since then. We’ll also hear from transplant social worker Daniela Matz, who assisted them.  The Census Bureau estimates that there are over 60 million Hispanics and Latinos living in the United States, and the Latinx population is the fastest growing minority. As many as 40 million are speaking Spanish as their first language. Although Hispanics and Latinos are more likely to experience kidney failure compared to other Americans, they are less likely to access kidney transplant as a solution, the resulting disparity means more years on dialysis, reduced quality of life, reduced life expectancy, and increased healthcare expenses.  Part of the problem is the waitlist for a transplant, there simply aren’t enough organs to go around. If a living donor can be found, then that is a gamechanger. But here we find another disparity – because the process of live donor kidney transplantation can often elude our minority populations. To address some of these issues, in 2018 Dr. Pablo Serrano established the Latino Transplant Clinic at the University of North Carolina (UNC) Division of Abdominal Transplantation, in Chapel Hill, NC, with the aim of providing culturally competent and culturally sensitive care.  August is National Minority Donor Awareness Month (NMDAM).  Founded in 1996 by the National Minority Organ Tissue Transplant Education Program (MOTTEP) to bring heightened awareness to donation and transplantation in multicultural communities. For more information and shareable resources please visit: https://www.donatelife.net/nmdam/ All views and opinions expressed in this podcast reflect those of the participants. We thank the participants and advisors who helped create this podcast, and our underwriter, Veloxis Pharmaceuticals. © Project Advocacy, 2021 Resources relevant to Episodes 2 of Kidney Transplant Conversations Welcome to Infórmate  El objetivo de ésta página bilingüe es educar a los hispanos / latinos acerca de la donación de riñón en vida. The goal of this bilingual page is to educate Hispanics / Latinos about living kidney donation.http://informate.org/   National Kidney Foundation:  La información más importante sobre la enfermedad renal. Provides lots of great information about kidney disease from prevention to transplant, including living donation. https://www.kidney.org/espanol   American Kidney Fund  Nuestra misión es ayudar a las personas a combatir la enfermedad de los riñones y vivir una vida más sana. Information plus financial assistance opportunities. https://www.kidneyfund.org/en-espanol/   National Foundation for Transplants Cómo eliminar las barreras financieras para los donantes vivos. Removing financial barriers to transplantation.  https://transplants.org/resources/  Children’s Organ Transplant Association: Recaudación de fondos y apoyo para niños y adultos jóvenes con poliquistosis renal.Fundraising and support for children and young adults with polycystic kidney disease. www.cota.org       DOWNLOAD TRANSCRIPT (PDF) ⬇️     
Kidney Transplant Conversations ~ Patient, Donor & Caregiver Edition
Kidney Transplant Conversations features diverse voices and experiences of donating, receiving, and caring for this gift of life. Over the coming months each new episode will feature interviews with patients, caregivers, advocates, donors, healthcare providers, and community leaders. All views and opinions expressed in the podcast reflect those of the participants and do not necessarily represent the views and opinions of the producers or underwriters. Series 1 of Kidney Transplant Conversations was underwritten by Veloxis Pharmaceuticals, Inc. Series 2 of Kidney Transplant Conversations is underwritten by Project Advocacy, Inc.