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Kaleidoscope: The Cortical Visual Impairment Podcast
Jessica Marquardt
17 episodes
6 days ago
Cortical visual impairment (CVI) is the leading cause of pediatric visual impairment in the developed world. The eyes can see, but the brain can't interpret the visual world. Due to neuroplasticity, the functional vision of a child with CVI can improve. The number of children with CVI is growing, so why isn't anyone talking about this public health crisis? We are. Music by Storm Crews. Art by Ian Kleinfeld.
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Parenting
Kids & Family
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Cortical visual impairment (CVI) is the leading cause of pediatric visual impairment in the developed world. The eyes can see, but the brain can't interpret the visual world. Due to neuroplasticity, the functional vision of a child with CVI can improve. The number of children with CVI is growing, so why isn't anyone talking about this public health crisis? We are. Music by Storm Crews. Art by Ian Kleinfeld.
Show more...
Parenting
Kids & Family
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The Early Days: A Mother's First Year on the CVI Journey | Rachel Bennett | 2
Kaleidoscope: The Cortical Visual Impairment Podcast
41 minutes 56 seconds
7 years ago
The Early Days: A Mother's First Year on the CVI Journey | Rachel Bennett | 2

Henry (5) has a new cortical visual impairment (CVI) diagnosis. His mom, Rachel, now understands why he is so frustrated. He can't interpret what he sees. Relying on the 10 characteristics of CVI, they infuse vision into everything they do. His vision has improved, and his whole being has too.

Not only has Rachel fully embraced the educational approach based on the research of Dr. Christine Roman, she and a group of other CVI moms are building a collective national movement to advocate for kids with CVI so that every child has the chance to progress. 

The Bennetts

In this episode:

  • The path to a CVI diagnosis.
  • Learning that vision can improve.
  • Changes to daily routines to accommodate for CVI characteristics.
  • Becoming a tiger mom.
  • Preparing for elementary school.

Cortical Visual Impairment: A Timeline

Start Seeing CVI Advocacy

Kaleidoscope: The Cortical Visual Impairment Podcast
Cortical visual impairment (CVI) is the leading cause of pediatric visual impairment in the developed world. The eyes can see, but the brain can't interpret the visual world. Due to neuroplasticity, the functional vision of a child with CVI can improve. The number of children with CVI is growing, so why isn't anyone talking about this public health crisis? We are. Music by Storm Crews. Art by Ian Kleinfeld.