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Kaleidoscope: The Cortical Visual Impairment Podcast
Jessica Marquardt
17 episodes
5 days ago
Cortical visual impairment (CVI) is the leading cause of pediatric visual impairment in the developed world. The eyes can see, but the brain can't interpret the visual world. Due to neuroplasticity, the functional vision of a child with CVI can improve. The number of children with CVI is growing, so why isn't anyone talking about this public health crisis? We are. Music by Storm Crews. Art by Ian Kleinfeld.
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Parenting
Kids & Family
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Cortical visual impairment (CVI) is the leading cause of pediatric visual impairment in the developed world. The eyes can see, but the brain can't interpret the visual world. Due to neuroplasticity, the functional vision of a child with CVI can improve. The number of children with CVI is growing, so why isn't anyone talking about this public health crisis? We are. Music by Storm Crews. Art by Ian Kleinfeld.
Show more...
Parenting
Kids & Family
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Life With CVI and Perfect Pitch | Dagbjört Andrésdóttir | 5
Kaleidoscope: The Cortical Visual Impairment Podcast
33 minutes 52 seconds
7 years ago
Life With CVI and Perfect Pitch | Dagbjört Andrésdóttir | 5

Opera performance student Dagbjört Andrésdóttir gives us a glimpse into her life with cortical visual impairment, describing music and strong parental support as her saving grace.

“I kind of knew always there was something, but I wasn’t sure if it was my vision or something else,” says Dagbjört.

Three years ago, with the help of her mother, she concluded that CVI was the culprit.

To parents she says, “You know your children better than anybody – any physician, any teacher, any person in the world…if you have a hunch there’s some problems, follow it. Don’t give up on it.”

In this episode:

  • Stumbling upon a diagnosis.
  • Challenges of growing up with CVI.
  • Advice for parents of kids with CVI.
  • Difficulties with new and complex environments.
  • Developing strength in other senses.

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Kaleidoscope: The Cortical Visual Impairment Podcast
Cortical visual impairment (CVI) is the leading cause of pediatric visual impairment in the developed world. The eyes can see, but the brain can't interpret the visual world. Due to neuroplasticity, the functional vision of a child with CVI can improve. The number of children with CVI is growing, so why isn't anyone talking about this public health crisis? We are. Music by Storm Crews. Art by Ian Kleinfeld.