In this episode of 'Into The Invisible,' Grace, also known as Gracie, discusses her experiences living with Marfan syndrome and Ehlers Danlos syndrome. As a 15-year-old, Grace opens up about the daily challenges and the misconceptions surrounding her conditions. She recounts her journey from early days of wearing a scoliosis brace and special leggings to the emotional toll of dealing with pain and medical appointments. Grace also emphasises the importance of support from friends, family, and healthcare professionals, and offers advice to other children with similar conditions. The episode sheds light on the often unseen struggles of those with invisible illnesses and underscores the need for empathy and better communication within the medical community.
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