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Insightful Moments: My VIBE
PTC Therapeutics
17 episodes
1 week ago
Everyone in the rare disease community has a story and every individual, every parent, every caregiver has a unique story to tell. Insightful Moments: My VIBE is here to tell those stories. We want to tell YOUR real-life stories and experiences from the rare disease community to inspire and remind listeners that we’re all in this together.
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Personal Journals
Kids & Family,
Society & Culture,
Health & Fitness,
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All content for Insightful Moments: My VIBE is the property of PTC Therapeutics and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Everyone in the rare disease community has a story and every individual, every parent, every caregiver has a unique story to tell. Insightful Moments: My VIBE is here to tell those stories. We want to tell YOUR real-life stories and experiences from the rare disease community to inspire and remind listeners that we’re all in this together.
Show more...
Personal Journals
Kids & Family,
Society & Culture,
Health & Fitness,
Medicine
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Finding Out You Have a Rare Disease
Insightful Moments: My VIBE
1 hour 16 minutes 20 seconds
3 years ago
Finding Out You Have a Rare Disease
It’s day 1 of the 28th annual PPMD conference and Paula Orandash speaks to families about their experiences in the rare disease community.
Insightful Moments: My VIBE
Everyone in the rare disease community has a story and every individual, every parent, every caregiver has a unique story to tell. Insightful Moments: My VIBE is here to tell those stories. We want to tell YOUR real-life stories and experiences from the rare disease community to inspire and remind listeners that we’re all in this together.