Imperfect Heart is a podcast designed for, hosted by and recorded with those affected by or involved with the care and support for those with the birth defect of a Myocardial Bridge. Interviews with healthcare professionals, support professionals and those navigating their way through the often challenging process of diagnosis and treatment are the focus of the content. It’s their stories that are meant to inform, educate and even entertain in an effort to insure hope for the listener that what they are experiencing is real, that they are not alone and that there is hope for relief from the varied symptoms of a Myocardial Bridge.
The host, Jeff Holden, has his own story to tell from symptom to diagnosis to treatment thus giving him insight and empathy as well as experience in the process of advocating for the patient. The program also seeks to make the healthcare industry more aware of the real symptoms of Myocardial Bridges with an aim to eliminate the gaslighting that is so prevalent around this defect and directly address the reality that Myocardial Bridges may be responsible for many more deaths from sudden cardiac arrest than previously thought. Early diagnosis and treatment could not only improve but may actually save lives when properly applied. More information can be found on the podcast website, www.myimperfectheart.com.
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Imperfect Heart is a podcast designed for, hosted by and recorded with those affected by or involved with the care and support for those with the birth defect of a Myocardial Bridge. Interviews with healthcare professionals, support professionals and those navigating their way through the often challenging process of diagnosis and treatment are the focus of the content. It’s their stories that are meant to inform, educate and even entertain in an effort to insure hope for the listener that what they are experiencing is real, that they are not alone and that there is hope for relief from the varied symptoms of a Myocardial Bridge.
The host, Jeff Holden, has his own story to tell from symptom to diagnosis to treatment thus giving him insight and empathy as well as experience in the process of advocating for the patient. The program also seeks to make the healthcare industry more aware of the real symptoms of Myocardial Bridges with an aim to eliminate the gaslighting that is so prevalent around this defect and directly address the reality that Myocardial Bridges may be responsible for many more deaths from sudden cardiac arrest than previously thought. Early diagnosis and treatment could not only improve but may actually save lives when properly applied. More information can be found on the podcast website, www.myimperfectheart.com.
Episode 53: To Unroof or Not to Unroof? Janie Desmond Ison Shares Her Very Unique Health Journey.
Imperfect Heart
52 minutes 7 seconds
5 months ago
Episode 53: To Unroof or Not to Unroof? Janie Desmond Ison Shares Her Very Unique Health Journey.
Could you be one of the tens of thousands of people unknowingly living with a myocardial bridge? Or worse yet, knowingly living with the condition and not having it recognized as a potentially symptomatic, even life threatening, condition? My guest today is another local acquaintance. A friend of a friend. An unbelievably close association to yet another myocardial bridge patient. Janie Desmond Ison and I are going to unpack the startling statistic that while a quarter of the population may have myocardial bridges, only a small fraction are diagnosed as symptomatic. This episode challenges prevalent misconceptions, shares the journey of symptoms often dismissed, and highlights the power of awareness in seeking proper medical attention. Through her story, we aim to connect with those who might feel alone in their struggle and encourage them to pursue the support they need, knowing this is yet another example of the condition that may be similar to what you're facing.Join us as we follow an individual's incredible journey from experiencing mild symptoms like shortness of breath and palpitations to receiving a life-changing diagnosis of a myocardial bridge and an uncommon solution. We discuss managing this condition amidst complications like low blood pressure and fatigue due to treatments from beta blockers. The narrative sheds light on navigating unexpected health issues and the emotional and physical challenges of making complex medical decisions. We emphasize the vital importance of trust in healthcare professionals and explore the paths available for effective management and recovery.Our conversation also offers a hopeful glimpse into life after heart surgery, focusing on recovery's emotional and physical hurdles. The critical role of cardiac rehabilitation, peer support, and the need to reassess life priorities post-surgery are discussed. We celebrate advancements in surgical techniques and the necessity of advocating for one's heart health by staying vigilant about symptoms. By sharing these stories of resilience and recovery, we hope to inspire and reassure listeners facing similar challenges, highlighting the strength found in community and support networks.For more information and details visit the website HERE (https://www.myimperfectheart.com/)To purchase the book, "My Imperfect Heart: Stories of Myocardial Bridges" find it at Amazon.com or in this link. (https://a.co/d/aNuRLQk)Chapter Summaries(00:00) Myocardial Bridge Awareness and DiscussionMyocardial bridges are often undiagnosed, causing frustration and symptoms like shortness of breath and heart attack-like sensations.(04:57) Journey With Myocardial Bridge DiagnosisPersonal journey of health challenges, diagnosis of myocardial bridge, managing condition with low blood pressure and fatigue.(19:58) Navigating Post-Surgery Complications and RecoveryA heart surgery journey highlights the importance of clear communication, informed decision-making, and navigating post-operative challenges.(35:02) Navigating Life After Heart SurgeryEmotional and physical challenges of heart surgery, importance of support and rehabilitation, and need for proactive health management.(42:10) Advocating for Your Heart HealthExploring heart surgery complexities, including myocardial bridges and evolving treatment options, and the importance of awareness and research.(50:47) Sharing Stories of Heart HealthAcknowledging and addressing heart health issues, sharing personal experiences, and emphasizing the importance of being proactive.
Imperfect Heart
Imperfect Heart is a podcast designed for, hosted by and recorded with those affected by or involved with the care and support for those with the birth defect of a Myocardial Bridge. Interviews with healthcare professionals, support professionals and those navigating their way through the often challenging process of diagnosis and treatment are the focus of the content. It’s their stories that are meant to inform, educate and even entertain in an effort to insure hope for the listener that what they are experiencing is real, that they are not alone and that there is hope for relief from the varied symptoms of a Myocardial Bridge.
The host, Jeff Holden, has his own story to tell from symptom to diagnosis to treatment thus giving him insight and empathy as well as experience in the process of advocating for the patient. The program also seeks to make the healthcare industry more aware of the real symptoms of Myocardial Bridges with an aim to eliminate the gaslighting that is so prevalent around this defect and directly address the reality that Myocardial Bridges may be responsible for many more deaths from sudden cardiac arrest than previously thought. Early diagnosis and treatment could not only improve but may actually save lives when properly applied. More information can be found on the podcast website, www.myimperfectheart.com.
