A podcast for parents and families of people living with rare diseases in Ontario. I Care for Rare is a social advocacy campaign, designed to give individuals, families and caregivers living with rare diseases a collective voice for system healthcare AND community support reform.
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A podcast for parents and families of people living with rare diseases in Ontario. I Care for Rare is a social advocacy campaign, designed to give individuals, families and caregivers living with rare diseases a collective voice for system healthcare AND community support reform.
The Unsung Heroes: Siblings Caring for Loved Ones with Rare Diseases
I Care for Rare
43 minutes 14 seconds
1 year ago
The Unsung Heroes: Siblings Caring for Loved Ones with Rare Diseases
Helen Ries, the co-founder of Siblings Canada, part of the Canadian Centre for Caregiving Excellence, shares her personal and professional insights on the critical role siblings play in caring for people with disabilities or rare diseases. Helen became the carer of her brother Paul when they lost their parents suddenly and in close succession. It’s been a 10-year journey in getting the support they need so that Paul can live his best life, and, in turn, Helen and her husband can too.
I Care for Rare
A podcast for parents and families of people living with rare diseases in Ontario. I Care for Rare is a social advocacy campaign, designed to give individuals, families and caregivers living with rare diseases a collective voice for system healthcare AND community support reform.
