A podcast for parents and families of people living with rare diseases in Ontario. I Care for Rare is a social advocacy campaign, designed to give individuals, families and caregivers living with rare diseases a collective voice for system healthcare AND community support reform.
All content for I Care for Rare is the property of Sandra Markus and is served directly from their servers
with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
A podcast for parents and families of people living with rare diseases in Ontario. I Care for Rare is a social advocacy campaign, designed to give individuals, families and caregivers living with rare diseases a collective voice for system healthcare AND community support reform.
The Social Isolation of Caring For Someone with a Rare Disorder
I Care for Rare
36 minutes 57 seconds
1 year ago
The Social Isolation of Caring For Someone with a Rare Disorder
Carl Weatherall discusses the challenges of parenting his child with complex needs into adulthood and the resulting social isolation his family has endured.
I Care for Rare
A podcast for parents and families of people living with rare diseases in Ontario. I Care for Rare is a social advocacy campaign, designed to give individuals, families and caregivers living with rare diseases a collective voice for system healthcare AND community support reform.
