In this final episode of Season One, I bring it home (literally) and share parts of my conversation with my husband Scott as he opens up about his perspective through Angelica’s hydrocephalus and Dandy-Walker diagnosis. Scott opens up about: The shock of receiving a diagnosis during pregnancyNavigating NICU life, Hurricane Maria and unexpected PICU transfersFinding humor in hard places Advocating as a caregiver and trusting your gut (and your partners)How resilience forms slowly, moment ...
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In this final episode of Season One, I bring it home (literally) and share parts of my conversation with my husband Scott as he opens up about his perspective through Angelica’s hydrocephalus and Dandy-Walker diagnosis. Scott opens up about: The shock of receiving a diagnosis during pregnancyNavigating NICU life, Hurricane Maria and unexpected PICU transfersFinding humor in hard places Advocating as a caregiver and trusting your gut (and your partners)How resilience forms slowly, moment ...
We Just One-Daying It: Miya + Mila’s Hydrocephalus Story
Hydro Heroes Unite
47 minutes
3 months ago
We Just One-Daying It: Miya + Mila’s Hydrocephalus Story
In this first episode of Hydro Heroes Unite, I sit down with Miya — a mother of three whose youngest daughter Mila lives with hydrocephalus and cerebral palsy. Miya opens up about navigating a four-month NICU stay with newborn twins during the pandemic, while also parenting a toddler at home. We explore what survival mode really looks like, what comes after crisis, and how Miya stays grounded in the long game of raising a child with special medical needs. This conversation is raw, real, and i...
Hydro Heroes Unite
In this final episode of Season One, I bring it home (literally) and share parts of my conversation with my husband Scott as he opens up about his perspective through Angelica’s hydrocephalus and Dandy-Walker diagnosis. Scott opens up about: The shock of receiving a diagnosis during pregnancyNavigating NICU life, Hurricane Maria and unexpected PICU transfersFinding humor in hard places Advocating as a caregiver and trusting your gut (and your partners)How resilience forms slowly, moment ...
