Hi guys, I'm Minie, #Italian special needs mum from #Sydney! 🇮🇹🇦🇺Welcome to our channel, where I share our daughter’s journey with #Kabukisyndrome. In this podcast episode, I interview Simone, a mum and entrepreneur who shares her son's journey with Congenital Nephrotic Syndrome of the Finnish type. The interview touches the complexities of kidney transplants on babies, the relationship between siblings, the creation of an agency aimed at raising awareness on disabilities and more. Are you a ...
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Hi guys, I'm Minie, #Italian special needs mum from #Sydney! 🇮🇹🇦🇺Welcome to our channel, where I share our daughter’s journey with #Kabukisyndrome. In this podcast episode, I interview Simone, a mum and entrepreneur who shares her son's journey with Congenital Nephrotic Syndrome of the Finnish type. The interview touches the complexities of kidney transplants on babies, the relationship between siblings, the creation of an agency aimed at raising awareness on disabilities and more. Are you a ...
A journey with Menkes Disease | Interview with Ana Romanow
How We...Special Needs
1 hour 1 minute
10 months ago
A journey with Menkes Disease | Interview with Ana Romanow
This is my first interview and it couldn't have been with a better guest: Ana Romanow. She's a super mum and super woman who's sharing her son's journey with Menkes Disease. Although Philip is not here with us anymore, his light and meaningful life keep inspiring all of us! I am so grateful that Ana allowed us to know even just a fragment of her intense experience with motherhood and Menkes. Are you a special needs parent? Are you interested in being interviewed on How We...Special Needs? L...
How We...Special Needs
Hi guys, I'm Minie, #Italian special needs mum from #Sydney! 🇮🇹🇦🇺Welcome to our channel, where I share our daughter’s journey with #Kabukisyndrome. In this podcast episode, I interview Simone, a mum and entrepreneur who shares her son's journey with Congenital Nephrotic Syndrome of the Finnish type. The interview touches the complexities of kidney transplants on babies, the relationship between siblings, the creation of an agency aimed at raising awareness on disabilities and more. Are you a ...
