In this episode we discuss how structural racism like underfunded research, inadequate care, and misconceptions about sickle cell disease have hindered treatment advancements. We cover a story of how the fragmented healthcare system can cause more harm for SCD patients.  And we highlight Sick Cells, an advocacy organization elevating the voices of the sickle cell community to influence positive change. Visit the Sick Cells website to learn about their advocacy efforts, join their ambassador program, share your story, and to donate so they can better serve the sickle cell community. Follow them on Instagram, FaceBook, Twitter, YouTube, and LinkedIn. If you would like to suggest a topic we should discuss, share your own personal story, or shoutout an organization or individual email us at distrustanddisparities@gmail.com. Visit the Distrust & Disparities website and follow us on Instagram, Facebook, YouTube, and LinkedIn. Visit our Buy Me A Coffee page to support the podcast. Distrust & Disparities is a proud member of The Health Podcast Network, which features authoritative shows, hosts and guests who take on the tough topics in health and care with empathy, expertise and a commitment to excellence. Resources Black People and Sickle Cell Anemia: Your Questions Answered – Healthline Sicklepedia: Sickle Cell Disorders – Sickle Cell 101 These Sisters With Sickle Cell Had Devastating, and Preventable, Strokes – The New York Times The Face of Sickle Cell: Kyra and Kami Crawford – Black Video News -| The Health Equity Podcast Channel is made possible with support from Bayer G4A. Learn more about how Bayer G4A is advancing equity, access and sustainability at G4a.health -| This episode originally aired on September 15th, 2023 on Distrust & Disparities. Listen, follow and subscribe here.