Keywords

hypermobility, EDS, Integral Movement Method, Zebra Club, chronic pain, movement therapy, nervous system regulation, healthcare education, community support, patient advocacy

Summary

In this episode of the Hacking Hypermobility, Luna and Shelli chat with Jeannie Di Bon, a movement therapist and founder of The Zebra Club. They discuss the challenges faced by individuals with Ehlers-Danlos Syndrome (EDS) and hypermobility, including personal experiences with diagnosis, the importance of community support, and the Integral Movement Method (IMM) developed by Jeannie.

The conversation emphasizes the need for better education among healthcare providers, the significance of nervous system regulation, and the role of the Zebra Club app in providing resources and support for the hypermobile community.

Full show notes available here.

Takeaways

• Jeannie Di Bon developed the IMM to help those with EDS and chronic pain.
• The Zebra Club app offers community, movement classes, and educational resources.
• Nervous system regulation is crucial before engaging in physical activity.
• Personal experiences with diagnosis can shape professional practices.
• The importance of individualized approaches in movement therapy for hypermobile patients.
• Community support is vital for those living with chronic conditions.
• Education for healthcare providers about EDS is lacking and needs improvement.
• Gentle, gradual movement is more effective than high-intensity workouts for hypermobile individuals.
• The IMM is evidence-based and focuses on integrating movement with mindfulness.
• Awareness and advocacy for EDS and hypermobility are essential for improving patient care.

Resources & Links

Full Show Notes Available Here!

Jeannie's Website: https://jeanniedibon.com

The Zebra Club App: https://www.thezebra.club

Get Jeannie's Book, Hypermobility Without Tears

Bookshop.org

Amazon (US)

Amazon (UK)