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GlycoCast, a journey of families, sugars and rare disorders
Ivan Martinez Duncker
13 episodes
4 days ago
Welcome to GlycoCast, the podcast where the sweet science of sugars meets the mysteries of medicine, and our shared humanity comes to life. We will focus on a journey of families, sugars and rare disorders called Congenital Disorders of Glycosylation. We'll bring you tales of struggle and perseverance, as we speak to families affected by CDGs, learn about their experiences, their challenges, and their achievements. We'll hear from the researchers on the front lines, unearthing the mysteries of CDGs, and the healthcare professionals who play a key role in managing these disorders.
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Medicine
Health & Fitness
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All content for GlycoCast, a journey of families, sugars and rare disorders is the property of Ivan Martinez Duncker and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Welcome to GlycoCast, the podcast where the sweet science of sugars meets the mysteries of medicine, and our shared humanity comes to life. We will focus on a journey of families, sugars and rare disorders called Congenital Disorders of Glycosylation. We'll bring you tales of struggle and perseverance, as we speak to families affected by CDGs, learn about their experiences, their challenges, and their achievements. We'll hear from the researchers on the front lines, unearthing the mysteries of CDGs, and the healthcare professionals who play a key role in managing these disorders.
Show more...
Medicine
Health & Fitness
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Fly-ing Insights: Unraveling Rare Disorders with Tiny Wings
GlycoCast, a journey of families, sugars and rare disorders
1 hour 9 minutes 4 seconds
2 years ago
Fly-ing Insights: Unraveling Rare Disorders with Tiny Wings

We had an insightful conversation with Ann and Steve Nguyen, sharing the touching story of their son Emmett who was affected by PIGA-CDG a type of Congenital Disorder of Glycosylation (CDG). Will understand how Emmett's legacy continues to inspire and bring hope to many. We will also have Dr. Clement Chow whose cutting-edge research is unraveling the mysteries of different rare disorders, including PIGA-CDG. For more information on CDGs please visit our sponsor at cdgcare.org.


GlycoCast, a journey of families, sugars and rare disorders
Welcome to GlycoCast, the podcast where the sweet science of sugars meets the mysteries of medicine, and our shared humanity comes to life. We will focus on a journey of families, sugars and rare disorders called Congenital Disorders of Glycosylation. We'll bring you tales of struggle and perseverance, as we speak to families affected by CDGs, learn about their experiences, their challenges, and their achievements. We'll hear from the researchers on the front lines, unearthing the mysteries of CDGs, and the healthcare professionals who play a key role in managing these disorders.