Naomi Wagner, MS, CGC dives into the topic of gene therapy, explaining why ocular genetics is an especially promising area for gene therapy and how discussion of gene therapy with patients is a routine part of her practice in providing telehealth genetic counseling services for ocular conditions. She also provides some perspective on just how long it can take for a gene therapy to become available, genetic counselors’ actual and potential roles in gene therapy trials, and the ethical and social issues surrounding gene therapy.
Find Naomi on Twitter: @Naomi_CGC
Related Articles and Resources:
American Society of Gene and Cell Therapy
Global Patient Registry for Refsum Disease
CF Foundation Patient Registry
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