Living with FTD

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From Care to Cure

MGH FTD Unit

10 episodes

2 days ago

The MGH Frontotemporal Disorders Unit hosts From Care to Cure, a podcast about frontotemporal disorders also known as FTD. Our first season will feature Dr. Brad Dickerson, renowned neuroscientist and the director of the MGH FTD Unit, introducing our clinical research program, explaining what FTD is and examining the process of diagnosis. Our podcast will feature the voices of our clinical research team and community experts as they discuss key topics such as care planning, symptom management and available treatments. For more information about the MGH FTD Unit, go to www.FTDBoston.org.

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Living with FTD

From Care to Cure

18 minutes 59 seconds

3 weeks ago

Living with FTD

Welcome to From Care to Cure, a podcast from the Massachusetts General Hospital Frontotemporal Disorders Unit. This episode features a conversation between Dr. Brad Dickerson, Director of the MGH FTD Unit, and Katie Brandt, theDirector of Caregiver Support Services and Public Relations in the Unit, discussing how to live a life alongside FTD and related conditions, finding the things that can give life purpose (including participating in research, and how addressing modifiable risk factors can impact life for people living with FTD and their care partners.

You can find your local Area Agency on Aging by enteringyour location at https://eldercare.acl.gov/home.

You can find your local chapter of the Alzheimer’s Association at https://www.alz.org/chapter-search. The Alzheimer’s Association 24/7 help line is available at 800-272-3900.

You can watch Katie Brandt’s keynote address at the Association for Frontotemporal Degeneration’s 2025 Education Conference at https://www.youtube.com/watch?v=yXlXGpZY11E.

You can learn about the Lancet Commission’s 2024 report on dementia prevention, intervention and care at https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(24)01296-0/abstract.

You can learn about the US POINTER study at https://www.alz.org/us-pointer/study-results.asp.

You can learn about participating in FTD research throughthe FTD Disorders Registry (https://ftdregistry.org/).

The MGH FTD Unit clinical research program is committed toproviding the highest quality of care while we work tirelessly for a cure for FTD, atypical and young-onset forms of Alzheimer’s Disease and related neurological disorders. You can learn more about the MGH FTD Unit at www.FTDBoston.org.

We would like to thank Bernie Metzger for our beautiful music, an excerpt from Bernie’s composition Ramblings An FTD Journey, inspired by his wife Karen Zander’s journey with FTD.

Amy Almeida is our producer.

From Care to Cure is made possible by generous contributions from donors to the MGH FTD Unit. If you would like to support our work, visit www.FTDBoston.org/Donate.

Please follow, like and share From Care to Cure so that we can raise awareness, funds and hope that the cure of tomorrow is not so far from the care of today.