Fragile X Dad & Mom is a podcast about a Dad and a Mom’s journey as they parent their two children who are diagnosed with Fragile X Syndrome. Their 9 year old son is also diagnosed with Severe Non Speaking Autism, Epilepsy, and Intellectual disability. This podcast is for all of those special needs parents raising special needs children where we can all come together and share the joys, the struggles and when sh&t gets real.
Parenting a special needs child can often feel isolating & can be frustrating until we meet other parents that share similar journey.
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Fragile X Dad & Mom is a podcast about a Dad and a Mom’s journey as they parent their two children who are diagnosed with Fragile X Syndrome. Their 9 year old son is also diagnosed with Severe Non Speaking Autism, Epilepsy, and Intellectual disability. This podcast is for all of those special needs parents raising special needs children where we can all come together and share the joys, the struggles and when sh&t gets real.
Parenting a special needs child can often feel isolating & can be frustrating until we meet other parents that share similar journey.
6 Dr. Randi Hagerman Special Guest Answering Fragile X Q/A
Fragile X Dad & Mom
27 minutes 23 seconds
5 years ago
6 Dr. Randi Hagerman Special Guest Answering Fragile X Q/A
Dr. Hagerman is medical director of the UC Davis MIND Institute and director of the Fragile X Research and Treatment Center. She has dedicated her life to Fragile X Research with 40 years of working in the Fragile X field. Dr. Hagerman, her husband, Dr. Paul Hagerman, and their research team are the discoverers of Fragile X-associated Tremor/Ataxia Syndrome (FXTAS), a late-onset neurodegenerative disorder.
listen to her as she answers some Q/A
Find Us on Facebook: https://www.facebook.com/erika.amaya0815 Instagram: https://www.instagram.com/ourfragilexlife/ Youtube at OurFragileXlife: https://www.youtube.com/channel/UCLkcITGVgGUvA4cgghC49Yw?view_as=subscriber Email: ourfragilexlife@gmail.com Blog: https://www.ourfragilexlife.com
Read more about Dr. Randi Hagerman
https://health.ucdavis.edu/team/children/598/randi-hagerman-pediatric-child-development--behavior-autism-neurodevelopmental-disorders-sacramento
Learn more about Fragile X syndrome https://fragilex.org/
https://www.fraxa.org/
Fragile X Dad & Mom
Fragile X Dad & Mom is a podcast about a Dad and a Mom’s journey as they parent their two children who are diagnosed with Fragile X Syndrome. Their 9 year old son is also diagnosed with Severe Non Speaking Autism, Epilepsy, and Intellectual disability. This podcast is for all of those special needs parents raising special needs children where we can all come together and share the joys, the struggles and when sh&t gets real.
Parenting a special needs child can often feel isolating & can be frustrating until we meet other parents that share similar journey.
