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F**king Normal
The Fking Normal Team
34 episodes
7 months ago

Join hosts, Lauren Fenton and Rina Teslica, both mothers to daughters with special needs as they and their guests share unique parenting stories and chat about the things they've learnt and are still learning. Prepare to sometimes laugh, sometimes cry, but hopefully leave with a shot of optimism in your arm!


The goal of the F**king Normal podcast is to extend the conversation and build a supportive community for other parents. We don't have the answers but want to create a safe space to share stories as we venture through parenting disabled children together.



Note: The F**king normal podcast is a parents perspective. We are not talking on behalf of disabled children or adults. We can't and we would never presume to. That's not our experience. We want to learn to parent and advocate better and this show is about our experience as parents.




For more information and transcripts for each episode go to our website at www.fkingnormalpodcast.com



The F**king Normal Team

Hosts & Editing: Lauren Fenton, Rina Teslica

Production team: Genevieve Porritt, Victoria Wason

Artwork: Sharon King-Chai

Music: Æ Mak - Listen on Spotify

Wider creative team: Mary Forrest, Clare Wright, Gemma Sherlock, Helen Gamble-Shields, Kathleen Javalla, Caroline MacPake, Evangelia Vasiliadou.



Hosted on Acast. See acast.com/privacy for more information.

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Parenting
Personal Journals,
Kids & Family,
Society & Culture,
Documentary
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All content for F**king Normal is the property of The Fking Normal Team and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.

Join hosts, Lauren Fenton and Rina Teslica, both mothers to daughters with special needs as they and their guests share unique parenting stories and chat about the things they've learnt and are still learning. Prepare to sometimes laugh, sometimes cry, but hopefully leave with a shot of optimism in your arm!


The goal of the F**king Normal podcast is to extend the conversation and build a supportive community for other parents. We don't have the answers but want to create a safe space to share stories as we venture through parenting disabled children together.



Note: The F**king normal podcast is a parents perspective. We are not talking on behalf of disabled children or adults. We can't and we would never presume to. That's not our experience. We want to learn to parent and advocate better and this show is about our experience as parents.




For more information and transcripts for each episode go to our website at www.fkingnormalpodcast.com



The F**king Normal Team

Hosts & Editing: Lauren Fenton, Rina Teslica

Production team: Genevieve Porritt, Victoria Wason

Artwork: Sharon King-Chai

Music: Æ Mak - Listen on Spotify

Wider creative team: Mary Forrest, Clare Wright, Gemma Sherlock, Helen Gamble-Shields, Kathleen Javalla, Caroline MacPake, Evangelia Vasiliadou.



Hosted on Acast. See acast.com/privacy for more information.

Show more...
Parenting
Personal Journals,
Kids & Family,
Society & Culture,
Documentary
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Ep 29: Helping my child find her voice with Cat Troiano
F**king Normal
1 hour 7 minutes 55 seconds
9 months ago
Ep 29: Helping my child find her voice with Cat Troiano

In this week’s episode, Lauren and Rina chat with museum curator and researcher Cat Troiano. Cat is mother to two young daughters, Stella (4) and Petra (almost 3). Stella has 5p minus syndrome, also known as Cri du Chat syndrome. Growing up in a multilingual family with a strong focus on language and linguistics, Cat’s perspective was profoundly transformed by her fight to meet Stella’s communication needs. This thought-provoking conversation delves into Cat’s journey, the challenges she faced and how she advocated to ensure Stella could more easily interact with the world around her.


Content Warnings

Very strong Language warning 

Diagnosis 


Guest Biography

Cat lives in London with her husband, Giorgio, and their two daughters Stella and Petra. Cat works as Curator of Photography at the V&A, and Giorgio manages the design team at a lighting manufacturing company. Professionally, Cat comes from a research background, curating exhibitions and publishing or presenting regularly about photography in its historical and contemporary environments. She has significant experience working in complex institutions, and expertise in institutional policy and practice in the cultural sector. Incidentally, this armed her with a skill set that has proven particularly useful in advocating for Stella – who was born with a rare genetic syndrome – and navigating the paperwork, systems and therapies that help her thrive. Catherine has always been interested in language and linguistics, and she is forever grateful to Stella for upending her world view about language and communication. 


Useful resources

  • fivepminus.org - 5p- Society. This is the American group (the biggest one) relating to the syndrome
  • Documentary by parent to child with 5p- A sweet mini-doc a filmmaker (also parent to CdCS child) made for a benefit concert in 2012. 
  • Raising a rare girl book - Heather Lanier's book 'Raising a Rare Girl' that Cat mentioned. 
  • Therarelife.ep-166-nonspeaking-child-longing-to-access-their-inner-world-give-them-medical-autonomy-w-suzi-boubion - Podcast episode referenced by Cat in which Suzy Boubion talks about her non-speaking child.


Hosted on Acast. See acast.com/privacy for more information.

F**king Normal

Join hosts, Lauren Fenton and Rina Teslica, both mothers to daughters with special needs as they and their guests share unique parenting stories and chat about the things they've learnt and are still learning. Prepare to sometimes laugh, sometimes cry, but hopefully leave with a shot of optimism in your arm!


The goal of the F**king Normal podcast is to extend the conversation and build a supportive community for other parents. We don't have the answers but want to create a safe space to share stories as we venture through parenting disabled children together.



Note: The F**king normal podcast is a parents perspective. We are not talking on behalf of disabled children or adults. We can't and we would never presume to. That's not our experience. We want to learn to parent and advocate better and this show is about our experience as parents.




For more information and transcripts for each episode go to our website at www.fkingnormalpodcast.com



The F**king Normal Team

Hosts & Editing: Lauren Fenton, Rina Teslica

Production team: Genevieve Porritt, Victoria Wason

Artwork: Sharon King-Chai

Music: Æ Mak - Listen on Spotify

Wider creative team: Mary Forrest, Clare Wright, Gemma Sherlock, Helen Gamble-Shields, Kathleen Javalla, Caroline MacPake, Evangelia Vasiliadou.



Hosted on Acast. See acast.com/privacy for more information.