Join hosts, Lauren Fenton and Rina Teslica, both mothers to daughters with special needs as they and their guests share unique parenting stories and chat about the things they've learnt and are still learning. Prepare to sometimes laugh, sometimes cry, but hopefully leave with a shot of optimism in your arm!
The goal of the F**king Normal podcast is to extend the conversation and build a supportive community for other parents. We don't have the answers but want to create a safe space to share stories as we venture through parenting disabled children together.
Note: The F**king normal podcast is a parents perspective. We are not talking on behalf of disabled children or adults. We can't and we would never presume to. That's not our experience. We want to learn to parent and advocate better and this show is about our experience as parents.
For more information and transcripts for each episode go to our website at www.fkingnormalpodcast.com
The F**king Normal Team
Hosts & Editing: Lauren Fenton, Rina Teslica
Production team: Genevieve Porritt, Victoria Wason
Artwork: Sharon King-Chai
Music: Æ Mak - Listen on Spotify
Wider creative team: Mary Forrest, Clare Wright, Gemma Sherlock, Helen Gamble-Shields, Kathleen Javalla, Caroline MacPake, Evangelia Vasiliadou.
Hosted on Acast. See acast.com/privacy for more information.
Join hosts, Lauren Fenton and Rina Teslica, both mothers to daughters with special needs as they and their guests share unique parenting stories and chat about the things they've learnt and are still learning. Prepare to sometimes laugh, sometimes cry, but hopefully leave with a shot of optimism in your arm!
The goal of the F**king Normal podcast is to extend the conversation and build a supportive community for other parents. We don't have the answers but want to create a safe space to share stories as we venture through parenting disabled children together.
Note: The F**king normal podcast is a parents perspective. We are not talking on behalf of disabled children or adults. We can't and we would never presume to. That's not our experience. We want to learn to parent and advocate better and this show is about our experience as parents.
For more information and transcripts for each episode go to our website at www.fkingnormalpodcast.com
The F**king Normal Team
Hosts & Editing: Lauren Fenton, Rina Teslica
Production team: Genevieve Porritt, Victoria Wason
Artwork: Sharon King-Chai
Music: Æ Mak - Listen on Spotify
Wider creative team: Mary Forrest, Clare Wright, Gemma Sherlock, Helen Gamble-Shields, Kathleen Javalla, Caroline MacPake, Evangelia Vasiliadou.
Hosted on Acast. See acast.com/privacy for more information.
In this episode, Lauren and Rina talk with teacher and mum Camilla Cook on how she left her home, job and life behind her during the COVID pandemic at the same time as coming to terms with the fact that her youngest daughter Sylva, had a yet undiagnosed genetic condition. Camilla shares her story of leaving Tanzania (where she lived and taught) pregnant with Sylva, with her husband and 3 year old in tow not realising they would not be going back. Camilla had a lot of help and support from her family and loved ones and acknowledges the privileged position she was and is in relative to others, but still it was very difficult contending with so many changes at once at the same time as processing her daughter’s condition. Camilla likens it to an Eddie Izzard joke about ‘Etch A Sketch’, where it was as if everything was shook away and cancelled and they had to start again. Now living in Brighton, they still don’t have a diagnosis for Sylva, but they have drawn a new picture and are very much enjoying how it looks.
Content Warnings
COVID 19 Pandemic
Seeking diagnosis
Amniocentesis
Guest Biography
Camilla Cook is an English teacher from Brighton. Her husband Will Kerr is a copywriter (and secretly brilliant poet), and they have two children: Freddy who is six, and Sylva who is two. As a family they spend lots of time on the beach, exploring the woods, and dancing to Kate Bush. Camilla has taught all over the world, starting in North London, then El Salvador, before returning to Hackney to help set up a charity called the Literacy Pirates. She convinced Will to move to Thailand with her, and they had Freddy in Chiang Mai. Then they all moved to Tanzania, before coming back to settle in good old Sussex by the sea. Sylva either has an undiagnosed genetic condition, or is a magical pixie sent to us humans by the forest folk, and is the subject of our conversation in this episode.
Resources
SWAN UK - ‘syndromes without a name’ supporting those without a diagnosis
Camilla’s blog can be found here.
Hosted on Acast. See acast.com/privacy for more information.