PDA and Autism Burnout: A Mother’s Journey of Resilience and Advocacy

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Finding Hope on the Spectrum

Brooke Wagner

32 episodes

1 day ago

Are you worried about your autistic son's or daughter's future and quality of life? Do you want to feel empowered to be the intuitive parent you know you are? Or are you a curious professional, seeking to learn and discover how to best reach your autistic clients? I invite you to join our community of growth seeking individuals as we connect, share and support each other. This show will feature heart to heart conversations with parents, professionals, and autistic individuals sharing personal insight and life experiences. We will dive deep into supports, programs, and stories that inspire us.

Mental Health

Health & Fitness

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All content for Finding Hope on the Spectrum is the property of Brooke Wagner and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.

Mental Health

Health & Fitness

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PDA and Autism Burnout: A Mother’s Journey of Resilience and Advocacy

Finding Hope on the Spectrum

1 hour 5 minutes 31 seconds

2 months ago

PDA and Autism Burnout: A Mother’s Journey of Resilience and Advocacy

In this episode of 'Finding Hope on the Spectrum,' Brooke is joined by Stephanie Myung, a PDA autism mom and former Board Certified Behavior Analyst (BCBA), to discuss the challenges and experiences of raising a child with Pathological Demand Avoidance (PDA). Stephanie shares her personal story of navigating her son's intense autistic burnout, the difficulties of obtaining a proper diagnosis and services, and the paradigm shifts she experienced from her former career as a behavior analyst to her current advocacy work. Stephanie provides insights into PDA behavior, common misconceptions about autism, and strategies for parents to handle such complex situations, emphasizing the importance of non-reactive parenting, community support, and understanding the neurobiological aspects of behavior. The episode aims to spread awareness, offer practical advice, and encourage a compassionate approach in supporting individuals with PDA and their families.

00:00 Introduction to PDA Parenting

01:35 Welcome to Finding Hope on the Spectrum

02:39 Introducing Stephanie Mayan

04:01 Stephanie's Journey with PDA and Autism

05:51 Understanding PDA and Autism Burnout

09:39 Challenges and Misconceptions in PDA

14:39 Navigating the School System with PDA

34:40 Impact on Siblings and Family Dynamics

36:13 Navigating Sibling Dynamics and Misophonia

37:01 The Importance of Separating Siblings for Individual Time

37:27 Challenges and Strategies for Parents

38:13 Understanding PDA and Finding Community Support

39:02 Effective Strategies for Managing PDA

42:15 The Role of Parents in PDA Management

43:38 Self-Care and Support for Parents

56:33 Advocacy and Raising Awareness

01:01:03 Concluding Thoughts and Resources

Connect with Finding Hope on the Spectrum:

Email: bwagner@findinghopeonthespectrum.com

Facebook: https://www.facebook.com/profile.php?id=61574918739411

Linkedin: https://www.linkedin.com/in/brooke-wagner-4819233a/

Instagram: @findinghopeonthespectrum

TikTok: Findinghopeonthespectrum

Guest Contact:

Instagram: @the_rehumanization_project

Recommended Books:

The Declarative Language Handbook: Using a Thoughtful Language Style to Help Kids with Social Learning Challenges Feel Competent, Connected, and Understood, By Linda Murphy

Recommended Articles

https://www.psychotherapynetworker.org/article/the-pda-lens/

Recommended Professionals

https://www.peacefulparenthappykids.com/

https://www.jessicarichardslcsw.com/

Poppy and the Overactive Amygdala, By Holly Rae Provan
Low-Demand Parenting, By Amanda Diekman
The Educator’s Experience of Pathological Demand Avoidance: An Illustrated Guide to Pathological Demand Avoidance and Learning, By Laura Kerbey