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FibroFlutters Patient Advocacy Organisation | Chronic Illness & Rare Disease Network
Carole Scrafton
4 episodes
5 days ago
Patient, Health, Research, Medical, Clinical, Digital Health and Pharma news, information, communications, advice, reviews and resources
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Health & Fitness
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All content for FibroFlutters Patient Advocacy Organisation | Chronic Illness & Rare Disease Network is the property of Carole Scrafton and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Patient, Health, Research, Medical, Clinical, Digital Health and Pharma news, information, communications, advice, reviews and resources
Show more...
Health & Fitness
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International Ataxia Awareness Day 25th September with ‘Ataxia and Me’
FibroFlutters Patient Advocacy Organisation | Chronic Illness & Rare Disease Network
6 minutes 2 seconds
4 years ago
International Ataxia Awareness Day 25th September with ‘Ataxia and Me’

The word ‘ataxia’ comes from the Greek ‘a taxis’, which means ‘without order’.

Our mission is to bring back some of the order to the lack of order.

It is the term used for a group of neurodegenerative diseases that affect balance and coordination.


Ataxia and Me are a partner organisation of FibroFlutters with us mutually supporting the work of each other. Helping to raise awareness of Ataxia is important to improve the understanding of the disease so that people know what it is.


This episode is also available as a blog post: https://fibroflutters.com/2021/08/31/international-ataxia-awareness-day-25th-september-with-ataxia-and-me/

FibroFlutters Patient Advocacy Organisation | Chronic Illness & Rare Disease Network
Patient, Health, Research, Medical, Clinical, Digital Health and Pharma news, information, communications, advice, reviews and resources