Kirsten Prest discusses the 'Encompass' study on care for disabilities in Uganda and its wider application in the NHS, where narrative-driven mixed methods research shaped phases from grants to implementation This talk will explore how a small qualitative study was able to inform a wider body of work, which includes both qualitative and quantitative methods. It will be framed within the “Encompass” study which aims to adapt and pilot test a group programme for parents/carers of children with disabilities originally developed in Uganda, to be implemented in an NHS setting in the UK. The initial qualitative work supported every phase of the mixed methods study from grant applications to key decisions around implementation, to informing the adaptation phase, to considering objectives and outcomes, and finally dissemination and future work. It has provided a wealth of knowledge and rich insights, much of which continues to inform future grant applications.
Kirsten is a paediatric occupational therapist and HARP doctoral research fellow. Her clinical and research interests include supporting the wellbeing of families who have children with complex disabilities, improving family-centred services, global child health, global innovation including knowledge transfer from low-resource settings to high-income countries, and research capacity building among allied health professionals. Creative Commons Attribution-Non-Commercial-Share Alike 2.0 UK: England & Wales; http://creativecommons.org/licenses/by-nc-sa/2.0/uk/
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Kirsten Prest discusses the 'Encompass' study on care for disabilities in Uganda and its wider application in the NHS, where narrative-driven mixed methods research shaped phases from grants to implementation This talk will explore how a small qualitative study was able to inform a wider body of work, which includes both qualitative and quantitative methods. It will be framed within the “Encompass” study which aims to adapt and pilot test a group programme for parents/carers of children with disabilities originally developed in Uganda, to be implemented in an NHS setting in the UK. The initial qualitative work supported every phase of the mixed methods study from grant applications to key decisions around implementation, to informing the adaptation phase, to considering objectives and outcomes, and finally dissemination and future work. It has provided a wealth of knowledge and rich insights, much of which continues to inform future grant applications.
Kirsten is a paediatric occupational therapist and HARP doctoral research fellow. Her clinical and research interests include supporting the wellbeing of families who have children with complex disabilities, improving family-centred services, global child health, global innovation including knowledge transfer from low-resource settings to high-income countries, and research capacity building among allied health professionals. Creative Commons Attribution-Non-Commercial-Share Alike 2.0 UK: England & Wales; http://creativecommons.org/licenses/by-nc-sa/2.0/uk/
Heart Failure in Primary Care: Lessons from Big Data
Evidence-Based Health Care
45 minutes
2 years ago
Heart Failure in Primary Care: Lessons from Big Data
Dr Clare J Taylor, Academic GP, explores how we can use large, anonymised GP datasets to improve our understanding of heart failure management in primary care. Nearly all UK residents are registered with a general practice and data collected during routine consultations can be used by researchers to understand more about common diseases. Heart failure occurs when the heart has been damaged and is struggling to pump enough blood to meet the needs of the body. Patients can feel breathless, exhausted and have swollen legs but treatments to improve quality of life and outlook are available.
In this lecture, Dr Taylor explores how we can use large, anonymised GP datasets to improve our understanding of heart failure management in primary care. With a focus on the patient throughout, she presents her recent work on heart failure diagnosis and survival to illustrate the power, and limitations, of using big GP data for research and to ultimately improve patient care.
Part of the Evidence-Based Health Care programme.
About the speaker:
Dr Clare J Taylor is a Clinical Lecturer in the Nuffield Department of Primary Care Health Sciences. Her research explores heart failure in primary care using big data epidemiology, prospective studies, and qualitative work. The findings have been published in high-impact journals and informed national and European heart failure policy. Clare is also experienced in postgraduate teaching and doctoral supervision and was a member of the National Institute for Health and Care Excellence Chronic Heart Failure guideline committee. She also works as an NHS general practitioner. Creative Commons Attribution-Non-Commercial-Share Alike 2.0 UK: England & Wales; http://creativecommons.org/licenses/by-nc-sa/2.0/uk/
Evidence-Based Health Care
Kirsten Prest discusses the 'Encompass' study on care for disabilities in Uganda and its wider application in the NHS, where narrative-driven mixed methods research shaped phases from grants to implementation This talk will explore how a small qualitative study was able to inform a wider body of work, which includes both qualitative and quantitative methods. It will be framed within the “Encompass” study which aims to adapt and pilot test a group programme for parents/carers of children with disabilities originally developed in Uganda, to be implemented in an NHS setting in the UK. The initial qualitative work supported every phase of the mixed methods study from grant applications to key decisions around implementation, to informing the adaptation phase, to considering objectives and outcomes, and finally dissemination and future work. It has provided a wealth of knowledge and rich insights, much of which continues to inform future grant applications.
Kirsten is a paediatric occupational therapist and HARP doctoral research fellow. Her clinical and research interests include supporting the wellbeing of families who have children with complex disabilities, improving family-centred services, global child health, global innovation including knowledge transfer from low-resource settings to high-income countries, and research capacity building among allied health professionals. Creative Commons Attribution-Non-Commercial-Share Alike 2.0 UK: England & Wales; http://creativecommons.org/licenses/by-nc-sa/2.0/uk/
