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Everything You Know About Disability Is Wrong
Easterseals
46 episodes
20 hours ago
Everything You Know About Disability is Wrong is a podcast for the disability community by the disability community, hosted by two disabled women. But if you’re not disabled, listen in to learn about real issues, celebrations, and conversations disabled people are having in their communities. Powered by Easterseals.
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All content for Everything You Know About Disability Is Wrong is the property of Easterseals and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Everything You Know About Disability is Wrong is a podcast for the disability community by the disability community, hosted by two disabled women. But if you’re not disabled, listen in to learn about real issues, celebrations, and conversations disabled people are having in their communities. Powered by Easterseals.
Show more...
Relationships
Society & Culture
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Annie Segarra on Medical Gaslighting and EDS: Her Fight for Change
Everything You Know About Disability Is Wrong
1 hour 4 minutes
11 months ago
Annie Segarra on Medical Gaslighting and EDS: Her Fight for Change

Navigating a medical system that dismisses your pain ignites a fire to advocate for others who are overlooked.

Annie Segarra is an activist and content creator dedicated to disability rights, body positivity, and social justice. Annie opens up about her deeply personal experience living with Ehlers-Danlos Syndrome (EDS), discussing the emotional and physical toll of navigating a medical system that often dismisses or misdiagnoses those with chronic illnesses. She shares her frustrations with being gaslit by medical professionals and the resilience it has taken to continue advocating for herself.


Key Moments


2:54Accessibility in spaces

18:27 Living with EDS

31:28 Experiencing medical gaslighting

52:45 Advocating for inclusive training and support


Connect with  Annie Segarra
LinkedIn:https://www.linkedin.com/in/anniesegarra 

Website:https://invisibleproject.org/annie-segarra/ 

Everything You Know About Disability Is Wrong
Everything You Know About Disability is Wrong is a podcast for the disability community by the disability community, hosted by two disabled women. But if you’re not disabled, listen in to learn about real issues, celebrations, and conversations disabled people are having in their communities. Powered by Easterseals.