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EUCOPE's Sounds of Science
EUCOPE
19 episodes
5 days ago
Helping you get acquainted with the most pressing EU policy files on pharmaceuticals and biotechnologies. Brought to you by EUCOPE, the European Confederation of Pharmaceutical Entrepreneurs.
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Life Sciences
Science
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All content for EUCOPE's Sounds of Science is the property of EUCOPE and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Helping you get acquainted with the most pressing EU policy files on pharmaceuticals and biotechnologies. Brought to you by EUCOPE, the European Confederation of Pharmaceutical Entrepreneurs.
Show more...
Life Sciences
Science
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Overcoming Barriers: Improving Access for Rare Disease Patients through Cross-Border Healthcare
EUCOPE's Sounds of Science
29 minutes 44 seconds
3 years ago
Overcoming Barriers: Improving Access for Rare Disease Patients through Cross-Border Healthcare

SOUNDS OF SCIENCE - EPISODE 6

The Cross-Border Healthcare Directive (Directive 2011/24/EU) marked a milestone for European patients. It created a legal framework for the patient’s right to seek healthcare in another Member State and to be reimbursed. It also provided a legal basis for enhanced European cooperation in key areas of healthcare – including quality and safety, Health Technology Assessment and eHealth, and rare diseases.

On May 12, the Commission published their long awaited evaluation of the Cross-Border Healthcare Directive. The report outlines several areas for improvement, but does not call for a reopening of the Directive, which would be a political decision as well.

As more Advanced Therapy Medicinal Products (ATMPs) have become available across Member States, it is still unclear how the cross-border healthcare framework will make access to such transformative treatment abroad more accessible. In this podcast, we’re addressing a number of complex issues with a lot of terminology so today we’ll be discussing the CBH in a holistic manner. The speakers will be able to clarify between the concept of CBH and the Directive itself.

Joining us on this podcast are:

  • Thomas Bols, Head of Government Affairs and Patient Engagement, PTC Therapeutics 
  • Victor Maertens, Government Affairs Manager, EUCOPE

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The European Alliance for Transformative Therapies (TRANSFORM)  is a multi-stakeholder Alliance that connects Members of the European Parliament (MEPs) and policy-makers with patient groups, medical experts and associations, scientists, researchers, industry actors, networks and other relevant stakeholders. More info at https://transformalliance.eu/

EUCOPE's Position Paper - Cross Border Healthcare for Patients: What can be done?

Learn more about EUCOPE at www.eucope.org

EUCOPE's Sounds of Science
Helping you get acquainted with the most pressing EU policy files on pharmaceuticals and biotechnologies. Brought to you by EUCOPE, the European Confederation of Pharmaceutical Entrepreneurs.