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Epilepsy Sparks Insights
Torie Robinson
100 episodes
3 days ago
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Medicine
Health & Fitness,
Science,
Life Sciences
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All content for Epilepsy Sparks Insights is the property of Torie Robinson and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
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Medicine
Health & Fitness,
Science,
Life Sciences
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Improving Seizure Diaries in LGS, Dravet & DEEs – Dr. Ewan Nurse
Epilepsy Sparks Insights
13 minutes
1 month ago
Improving Seizure Diaries in LGS, Dravet & DEEs – Dr. Ewan Nurse
Did you know seizure diaries in LGS & Dravet often capture less than half of seizures?! Today we hear from Dr. Ewan Nurse, an engineer & epilepsy researcher in Melbourne, who shares research into seizure reporting in developmental & epileptic encephalopathies (DEEs). We explore why seizure diaries miss so many seizures, how carers sometimes log non-seizure events, and what that means for families and clinicians. Ewan also talks about the promise & limits of wearable devices, EEG headbands & implants, and why collaboration between engineers, clinicians, carers & families is essential for the future of epilepsy care. 🌐 More about Ewan👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ewan-nurse-seizure-diaries-eeg-dees-dravet-lgs    🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights     👕 Check out our cool merch 👇🏻 https://epilepsy-sparks.creator-spring.com    🎧 Listen to the podcast 👇🏻 https://epilepsysparksinsights.podbean.com     📖 Chapters 00:00 Intro 14:30 Understanding Developmental and Epileptic Encephalopathies 17:57 Future of Seizure Tracking Technology 21:01 Collaboration Between Clinicians and Engineers 23:52 The Broader Impact of Epilepsy Beyond Seizures 00:00 Conclusion & Thanks   🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary    📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks  - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social  - Instagram https://www.instagram.com/epilepsysparks  - Facebook https://www.facebook.com/epilepsysparks   - TikTok https://www.tiktok.com/@epilepsysparks 
Epilepsy Sparks Insights