All content for Dr Golly and the Experts is the property of Dr Golly and is served directly from their servers
with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
The road to diagnosis of Sanfilippo Syndrome, with Sarah Warden
Dr Golly and the Experts
45 minutes 46 seconds
1 year ago
The road to diagnosis of Sanfilippo Syndrome, with Sarah Warden
Sarah Warden knew that her son, Callum wasn’t progressing as he should, but she could never have predicted what was causing the delays. Callum’s final diagnosis was Sanfilippo Syndrome, a rare genetic condition described as ‘childhood dementia’. This week, Sarah talks about how she had to persevere to get the right diagnosis, and what this rare condition means for her life and her family.
LINKS Check out the Sanfilippo Children’s Foundation on Instagram https://www.instagram.com/sanfilippochildrensfoundation/To visit the Sanfilippo Children’s Foundation website click HERE To donate to Sarah’s fundraiser click HERESee omnystudio.com/listener for privacy information.
