We drove 5 hours to see a Nuero Genetic Dr to discuss UBTF

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Double Rare: A Mother's Path With Two Rare Diseases

Katie Canning

11 episodes

4 months ago

Join us on a deeply moving journey as we delve into the remarkable story of a mother's unwavering love for her son, who battles not one, but two rare diseases. Through candid conversations and heartfelt moments, listeners will gain insight into the challenges, triumphs, and resilience of a family navigating the complexities of rare medical conditions. From the initial shock of diagnosis to the daily realities of caregiving, this podcast explores the profound bond between a mother and her child, demonstrating the power of love and determination in the face of adversity. Tune in to be inspired by the courage, strength, and unwavering hope of this extraordinary duo as they navigate life's unexpected twists and turns together.

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Join us on a deeply moving journey as we delve into the remarkable story of a mother's unwavering love for her son, who battles not one, but two rare diseases. Through candid conversations and heartfelt moments, listeners will gain insight into the challenges, triumphs, and resilience of a family navigating the complexities of rare medical conditions. From the initial shock of diagnosis to the daily realities of caregiving, this podcast explores the profound bond between a mother and her child, demonstrating the power of love and determination in the face of adversity. Tune in to be inspired by the courage, strength, and unwavering hope of this extraordinary duo as they navigate life's unexpected twists and turns together.