Today’s episode is for all those parents who want to know more about intellectual disability or have an affected child.

Have you seen a child who doesn’t act his age? He/she might act childish, have odd mannerisms like flapping hands or he might be drooling, constantly pulling his mum’s dress, keeping his head in a particular position. In medical terms, this disorder is called “intellectual disability” previously known as “mental retardation”

There are many causes of Intellectual disability but Let’s talk about a genetic condition called fragile x syndrome.It is the most common form of inherited intellectual disability in males and females. To discuss it in great detail we have with us Mrs Shalini Kedia, Chairperson of Fragile X Society-India. Fragile X is one of the leading causes of inherited intellectual disability and Autism worldwide.

We have spoken about things like:

• If you are planning a pregnancy then, what should you keep in mind before going ahead, with regards to Fragile X syndrome?
• What is the relationship between Fragile X syndrome and A common learning disability called Autism?
• Why is diagnoses a problem in India and what do you suggest should be done on the part of parents so they can become aware of this condition
• Once diagnosed with Fragile X syndrome, what next?
• What are the problem areas and what sort of therapies, programs can help these kids live a better life?
• What was the idea behind the fragile x society and how did it get conceptualized?
• What sort of work does your organization do to support families with fragile x syndrome.
• How can we reduce the stigma associated with intellectual disabilities and help kids and families struggling with such conditions?
• Where do these kids stand with regards to settling in society and living an independent life? What sort of vocational courses suit them so they can live a life of dignity without Relying on others.

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