Bringing PANS/PANDAS into the spotlight: one mother’s mission for awareness and change. In this episode of Demystifying PANS/PANDAS, Gabriella True shares her journey as a mother of two children and her path to leading ASPIRE, a national nonprofit dedicated to PANS/PANDAS. She emphasizes the role of family and school support programs and the growing movement to bring these conditions into public consciousness.
----
In this episode of Demystifying PANS/PANDAS, Gabriella True joins us to share her powerful story as both a mother navigating these conditions with her children and as the President of ASPIRE, a leading nonprofit dedicated to raising awareness and supporting families. She recounts her children’s struggles, the challenges of delayed diagnoses, and the breakthrough moments that shaped her advocacy journey. Gabriella emphasizes how ASPIRE has become a lifeline, offering webinars, support groups, and vital educational resources for families and schools.
The conversation highlights ASPIRE’s multifaceted approach, from empowering families with knowledge to training educators and advocating for policy change. Gabriella also addresses why PANS/PANDAS remains underrecognized, the role of stigma in delaying diagnoses, and the importance of creating community connections. Above all, she shares words of hope, encouraging families to find gratitude each day and reminding them that progress, though sometimes slow, is real and ongoing.
----
Gabriella True is a dedicated advocate, educator, and community leader supporting families impacted by PANS/PANDAS. As a mother of children affected by these complex disorders, she turned her personal journey into a mission to raise awareness, expand resources, and empower caregivers worldwide.
She serves as the President of ASPIRE (Alliance to Solve PANS and Immune-Related Encephalopathies), where she leads initiatives to advance education, promote research, and connect families with vital support. Gabriella also collaborates with clinicians, researchers, and policymakers to ensure that patients and families receive the recognition, care, and compassion they deserve.
----
Website: https://aspire.care/
LinkedIn: https://www.linkedin.com/in/gabriella-true-581a9a9/
Instagram: https://www.instagram.com/aspirepans/
----
Website: https://www.drohara.com
Facebook: https://www.facebook.com/drnancyohara/
Instagram: https://www.instagram.com/nhoharamd/
LinkedIn: https://www.linkedin.com/in/nancy-o-hara-md-mph-faap-390781258/
----
PODCAST
Thank you for listening.
Please subscribe and share.
This podcast is produced by DrTalks.com https://drtalks.com/podcast-service/
