"DEARG - Putting Kathleen King in the Hot Seat" with Johanna Huber:
Kathleen’s Personal Journey:
Diagnosed with endometriosis after a nine-year delay, facing dismissal from doctors and misinformation.
Frustrated by the lack of awareness and support, Kathleen became a dedicated advocate.
Current Advocacy Work:
Challenges and Importance:
Endometriosis advocacy faces funding difficulties, burnout risks, and the emotional toll of supporting patients.
Despite challenges, Kathleen emphasises the importance of accurate information and individualisation of care.
She advocates against misinformation and low-quality research, highlighting the need for critical evaluation.
Key Qualities for Advocacy:
Open-mindedness, active listening, and critical thinking skills
Passion and commitment to empowering others
Additional Points:
Kathleen underlines the crucial role of:
Accurate information for endometriosis patients
Standardised care and specialist access
Open communication, education, and support for women's health
Recognising and addressing abnormalities in menstrual health
Overall:
Kathleen King's personal experience and dedicated advocacy work highlight the challenges and importance of improving endometriosis awareness, diagnosis, and treatment. Her efforts contribute to empowering individuals, building stronger communities, and driving positive change.
BBC Radio 4 India Rakusen 28ish days later series. https://open.spotify.com/show/0le1kyKiXmaI8fsZL8owqp