My name is Frankie Caputo and on this podcast I have people from all around the world talk to me about their experience with Nystagmus. From students, to parents, to artists, and everyone in the middle, I want to talk to them all! Having Nystagmus can play a huge role in determining the kind of person someone will become. I want to dig into that and find out how Nystagmus has affected the lives of others and share stories of past experiences.
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My name is Frankie Caputo and on this podcast I have people from all around the world talk to me about their experience with Nystagmus. From students, to parents, to artists, and everyone in the middle, I want to talk to them all! Having Nystagmus can play a huge role in determining the kind of person someone will become. I want to dig into that and find out how Nystagmus has affected the lives of others and share stories of past experiences.
Competing in Deca, Eye Exercises, High School with Nystagmus | Dancing Eyes Podcast #10 - Alex
Dancing Eyes Podcast
1 hour 7 minutes
3 years ago
Competing in Deca, Eye Exercises, High School with Nystagmus | Dancing Eyes Podcast #10 - Alex
In episode 10 of The Dancing Eyes Podcast, Alex joins me to talk about his experience living with Nystagmus. He is a freshman in high school and just competed in his first Deca competition. Timestamps for conversation topics are listed below. TIMESTAMPS 0:00 Introduction 01:05 Episode begins 01:35 Alex backstory 03:35 Involvement with American Nystagmus Association 04:35 Doctor stories/ playing sports 07:35 Head tilt/ zoom calls 09:45 Avoiding head tilt while having conversations or pictures/ looking for Nystagmus sources as a teenager 14:30 Creation of the podcast/ logo design 16:25 Do you consider Nystagmus to be a disability? 18:30 What other conditions do you have? 19:05 Alex’s experience with his first Deca competition/ involvement of Nystagmus in the competition 31:35 Bringing up the Nystagmus when meeting new people/ difficulties making friends/ school experiences 37:45 Obtaining a driver's license 38:40 I demonstrate the eye exercises that I have been doing 42:30 Back to the driving talks/ technology and Nystagmus 48:15 504 plan/ school accommodations 50:45 Alex’s Nystagmus conference experience/ public speaking 58:20 Nystagmus in Alex’s family 59:55 My experience with procedures on my eyes (Kestenbaum and lasik) Podcast Instagram: https://www.instagram.com/dancingeyespodcast/ Personal Instagram: https://www.instagram.com/frankiecaputo22/ NEW EPISODES ON THE FIRST AND THIRD MONDAY OF EVERY MONTH Thank you for watching. Hope you guys enjoy :)
Dancing Eyes Podcast
My name is Frankie Caputo and on this podcast I have people from all around the world talk to me about their experience with Nystagmus. From students, to parents, to artists, and everyone in the middle, I want to talk to them all! Having Nystagmus can play a huge role in determining the kind of person someone will become. I want to dig into that and find out how Nystagmus has affected the lives of others and share stories of past experiences.