In this enlightening episode, I dive into the world of neurofibromatosis type 1 (NF1), a genetic disorder that affects thousands of individuals worldwide. Join me as I sit down with Whitney, who shares her personal journey living with NF1. We explore the symptoms and causes of this condition, as well as its connection to schwannomatosis and other genetic disorders. Whitney opens up about her advocacy work, shedding light on the importance of awareness and support for those affected by NF1. Whitney shares how she has traveled to Washington D.C & Chicago to talk with representatives about the disorder. Tune in for an insightful conversation that not only educates but also inspires hope and resilience within the community!
Links for info on NF1: