In this heartfelt episode, I welcome friend and fellow advocate Shawn Carey, who opens up about the devastating loss of his mother, Wendy, to glioblastoma. From the early days of her misdiagnosis to the strength she displayed throughout her illness, Shawn reflects on the legacy Wendy left behind. Together, he and Holly talk candidly about navigating terminal illness, the unique grief of losing aparent, and how honoring a loved one’s memory can take many forms. Shawn shares how his advocacy work has helped him find healing—and how the brain tumor community, though born of tragedy, has become a place of deep connection and purpose.
Shawn Carey is a dedicated advocate and former care partner for his mother, Wendy, who passed away from Glioblastoma in 2018. Since her passing, Shawn has worked to bring meaningful change for brain tumor patients and their care partners. Focusing on the care partner experience, he regularly advocates on Capitol Hill for increased funding to further research and treatment options. Through his advocacy work, Shawn has partnered with many organizations, including StacheStrong and the National Brain Tumor Society.
Shawn earned his Bachelors degree from Wilkes University in Communications Studies and currently works as a public relations and communications professional. His past professional experience includes financial services, product marketing and most recently healthcare. He currently resides in Binghamton, NY.
Holly Gainsboro, founder of Golden Heart Grief Support & Education, is a certified grief support specialist/coach and certified grief educator. Following the death of her late husband, Steven, Holly felt pulled to be present for others experiencing their own losses—not just pertaining to death, but any event that may result in a grief response. She guides those who have suffered losses by helping them navigate their way through grief, transitioning them to a place of joy and hope. Holly also facilitates grief support groups, and grief education workshops. She is thrilled to co-host Creating Space for Grief & Hope with her dear friend and colleague Elizabeth Catignani. You can learn more on her website: https://www.goldenheartgrief.com
Elizabeth Catignani is a Certified Grief Recovery Specialist, Certified Creative Grief Coach, and founder of the online platform Her Creative Wellness. After experiencing baby loss and young widowhood by the age of 27, Elizabeth has made it her mission to support and empower others on their own unique path through loss and healing. She is the author of “Creative Grieving: A Hip Chick’s Path from Loss to Hope” (available on Amazon and Audible) and “The Creative Grieving Workbook” (now available on Apple Books). You can learn more on her website: https://www.hercreativewellness.com
