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Courageous Parents Network
Courageous Parents Network
35 episodes
9 months ago
Arika Patneaude is a licensed clinical social worker who is the director of bioethics and pediatric palliative care at Seattle Children’s Hospital. She is also a passionate advocate for health equity and awakening to unconscious bias in medicine and the impact it has on underresourced and historically excluded populations. I experienced her passion as a Call to Action in multiple ways.
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Kids & Family
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Arika Patneaude is a licensed clinical social worker who is the director of bioethics and pediatric palliative care at Seattle Children’s Hospital. She is also a passionate advocate for health equity and awakening to unconscious bias in medicine and the impact it has on underresourced and historically excluded populations. I experienced her passion as a Call to Action in multiple ways.
Show more...
Kids & Family
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Dawn and Blyth: anticipating a clinical trial
Courageous Parents Network
32 minutes 48 seconds
5 years ago
Dawn and Blyth: anticipating a clinical trial
Today the landscape for families of children diagnosed with rare and fatal conditions looks very different than it did even a decade ago. New therapies and treatments are here, including gene therapy. But what do the innovations mean for parents who may be faced with the opportunity to enroll their child in an early stage clinical trial which is, at its core, an experiment? In this episode, CPN’s Blyth Lord, whose daughter did not live to see the new possibilities, talks with Dawn Mariano, a mom who will be facing such a decision for her baby daughter.
Courageous Parents Network
Arika Patneaude is a licensed clinical social worker who is the director of bioethics and pediatric palliative care at Seattle Children’s Hospital. She is also a passionate advocate for health equity and awakening to unconscious bias in medicine and the impact it has on underresourced and historically excluded populations. I experienced her passion as a Call to Action in multiple ways.