Episode 50 - NUS1 Foundation

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CoRDS Cast

Sanford CoRDS

53 episodes

3 hours ago

This is CoRDS Cast, a rare disease podcast created by the team at Sanford Research. Our rare disease registry, CoRDS, connects patients and researchers everywhere. Here, you'll hear interviews with patients, patient advocates, physicians, and researchers to raise awareness about the 7,000 rare conditions affecting 1 in 10 people worldwide.

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Episode 50 - NUS1 Foundation

CoRDS Cast

26 minutes 45 seconds

9 months ago

Episode 50 - NUS1 Foundation

On this episode of CoRDS Cast you will hear from Andrea Johnson and Carissa Carman who are not only the co-founders of the NUS1 Foundation, but also amazing parents to their sons who are diagnosed with NUS1.

We also get the pleasure of speaking with Richard Steet who is the Director of Research at the Greenwood Genetic Center and Heather Flanagan-Steet who is the Associate Director of Research at the Greenwood Genetic Center. Richard and Heather are both heavily involved with NUS1 research and with the help of Andrea and Carissa, come together to make an impact with the NUS1 community.

For more information, please visit: https://www.nus1foundation.org/

Enjoy!