Episode 49 - BFLS Inc.

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CoRDS Cast

Sanford CoRDS

53 episodes

3 days ago

This is CoRDS Cast, a rare disease podcast created by the team at Sanford Research. Our rare disease registry, CoRDS, connects patients and researchers everywhere. Here, you'll hear interviews with patients, patient advocates, physicians, and researchers to raise awareness about the 7,000 rare conditions affecting 1 in 10 people worldwide.

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Episode 49 - BFLS Inc.

CoRDS Cast

25 minutes 15 seconds

1 year ago

Episode 49 - BFLS Inc.

Tune in as Polly sits down with Kearstyn Shaw and Dr. David Picketts with BFLS Incorporated.

Kearstyn's son was diagnosed with BFLS in 2021. Kearstyn has been a strong advocate for her son and her community since the diagnosis.

Dr. David Picketts is a researcher at the Ottawa Hospital Research Institute. His research is focused on understanding the role of epigenetic regulators in brain development and neurodevelopmental disorders (NDDs). Dr. Picketts works closely with Kearstyn to help find a cure and treatments for BFLS.

For more information, you can visit: www.bflsinc.com

Enjoy!