Episode 48 - KBG Syndrome Association

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CoRDS Cast

Sanford CoRDS

53 episodes

4 days ago

This is CoRDS Cast, a rare disease podcast created by the team at Sanford Research. Our rare disease registry, CoRDS, connects patients and researchers everywhere. Here, you'll hear interviews with patients, patient advocates, physicians, and researchers to raise awareness about the 7,000 rare conditions affecting 1 in 10 people worldwide.

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Episode 48 - KBG Syndrome Association

CoRDS Cast

16 minutes 55 seconds

1 year ago

Episode 48 - KBG Syndrome Association

On this episode of CoRDS Cast, Polly sits down with Brianna Dose with the KBG Syndrome Association. Brianna is not only a strong advocate for her community but she also has a daughter with this rare condition. While being a pediactric nurse in neurology, she was put in the exact postition she needed to be to help her daughter and fight to find answers.

To learn more about the KBG syndrome association, please visit: kbgsyndrome.org